Tag Archive for: type 1 thursday

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Recent Insulin Pricing Changes

What are your thoughts on the recent insulin pricing changes in the USA? Let’s discuss and see what else needs to be done to safeguard the new insulin pricing. BUT – this is not about me sharing my opinion on this (that’s just effing ridiculous because I have no clue!) I want to hear from you – let’s discuss in the comments!

Throughout March 2023, both Eli Lilly and Novo Nordisk (and since I wrote this, also Sanofi!) have announced insulin pricing reductions of 70-78%. (just in case you’ve been living under neath the rock in the diabetes community lately!) These three players make up 90% of the insulin production in the world. They are really the ones that can make a difference for so many people, including people like you and me, and everyone that do rely on life supporting medications such as insulin.

These recent insulin pricing changes are a fantastic first step! It’s so needed in the community. (However, let’s look forward and see where we go from here (more on that further down))

At the same time, I am wondering why these insulin pricing changes are only happening now? There’s been pressure on these big companies from many different sides in the US and internationally, not least through a T1International with Elizabeth Pfiester at forefront of the barricades, so to speak, fighting for this to happen. This is definitely influenced and done by diabetes advocates, such as you and me, sharing our opinion and signing petitions and sharing content that ultimately put pressure on these companies. We have something to be proud of, even the ones of us who are not in the US! We are still cheering you on from the sidelines, so happy for this development. In my opinion, these decisions were really pressurised by advocates, along with the development of biosimilar insulin producers (smaller companies that are in the process, or already are, producing insulins that work very similarly to the ones protected by the big insulin producers).

Furthermore, why stop at insulin? Insulin is, of course, the one thing that we do need to live. Technically, we don’t necessarily need insulin pumps, CGM’s and stuff. But what about pricing of these enormously helpful tools and technology? I realise that there is a lot of profit to be made from living with this lifelong condition – I get it. But why not try to alleviate the burden of living with diabetes further and change the pricing structure on these, as well? Insulin, YES, a fantastic first step! But let’s keep going.

In the light of that since 2002, these insulin prices have tripled. In 21 years, the price has tripled. To me, the notion and opinion that insulin pricing legislation is needed in the US, only makes sense as a next step. I do believe that is something that we will see – hopefully pretty soon! Realistically, I think it might still take some time.

Another question that I’ve seen floating around is whether or not the discount cards for the different insulins will be removed or if they’re going to be kept? This is, and I guess remains closely linked to the status of health insurance in the US, which is a very complex, highly complex matter (especially in the eyes of a very, in comparison, privileged European resident.)

The recent insulin pricing change will definitely save lives. Every person with diabetes who is insulin dependent in the US, will see the effect of this and it will make sure that they do have a fairer access to their life saving medication. I do hope for the sake of these big companies that the new insulin pricing is not just a PR stunt, that it is actually real, and they will help to save lives.

On the other hand. one can’t deny that the high insulin pricing has cost a lot of lives, effort and energy. These pricing changes won’t bring back the people who have passed away due to rationing their medication. Who had to not get the insulin because of the costs, and instead had to prioritise other costs. No matter the actions made now, there are so many forever heartbroken parents, siblings and children who will never get that significant person in their life back. However, at least this can maybe prevent many more from going the same way.

While the insulin pricing point is lowered by 70-78%, respectively, we have to remember that the production price of a vial of insulin is $3-6. In the future, paying $50-60 for a vial of insulin is still (ridiculously) much profit for these companies. I’m certain we won’t see any bankrupts happening with these pricing changes! (At the same time, I have been wrong before, so let’s see what happens.)

I’m trying to share my picture here. But I am also very far away from the US. I live in Europe in a very privileged country when it comes to insulin pricing. While I both sympathise and am empathic with the insulin pricing there, I will never understand exactly how it is. I live in Europe, and in Switzerland more specifically. I am almost ashamed to say how cheap my insulin is! For a five week supply, the full list price is the equivalent of $40, of which I pay 10%. So I personally pay $4 for five weeks of insulin, very much thanks to the private health insurance system that we do have here. (It’s mandatory for everyone to have a private health insurance in Switzerland. Of course, you pay a lot but on the other hand, you do get a lot back in return.) Same in for example, our Scandinavian counterparts, where I originally am from, or the NHS in England, where they have an universal healthcare system, where all medications are for free. Canada and Mexico aren’t affected by similar insulin pricing to the US. I wanted to highlight that there are still huge differences, even with these pricing changes in terms of what and how we can access it.

So in conclusion (and I think we’re all ready for this now!), I am following this with a huge interest. I’m hoping, and my positive little mindset is telling me that this could be a potential start of a huge domino effect. To other diabetes tools and tech and into other condition areas that are affected by high priced medications, as well as into other countries and ensuring accessibility. I’m hoping this is the first step to that!

Also, I can feel in my pinky toe that there will be a US legislation about this quite soon. Senator Sanders & Co just launched another initiative. Let’s see what happens (as similar things have been shut down before). Nevertheless, we are we’re waiting and watching with excitement.

Everyone in Europe and beyond are cheering you on in the US, we are so so happy for this great success. Well done to all advocates and everyone who have helped make this happen.

But yeah, what are your opinions? What are your pluses and minuses? Good, bad, ugly, something in between? frustrations, happiness, tears of joy?

Disclaimer
The only purpose of this video and website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video and website is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.

My EASD2020 Summary

Last week, I was fortunate enough to be able participate in EASD2020, through a scholarship from #dedocvoices The point of dedoc and dedocvoices is to give patients the chance to hear the new information and science from the source, as well as ask questions, under the motto of “Nothing about us, without us”, and I couldn’t agree more! What an amazing group to be part of, check them out and apply to join future conferences!

I’ve summarized my main take aways (although you may have seen some on social media throughout the event, too! (see below), trends, and, perhaps most intriguingly, my main questions and/or concerns…

Below is a short summary, in case a 16 minute video is too long! 😉

EASD2020 Summary – Hanna Boëthius

+ Surprisingly much talk about ketones, ketones as fuel & ketosis.
+ Epigenetics role in diabetes complications
+ Genetic subtypes of diabetes becoming more prevalent to be considered in the future.
+ Talk of health literacy, communication, individualised, personalisation, beyond medicine, integrated diabetes care, lifestyle, EDUCATION!
+ Loved getting to know new people, companies, tools, solutions.

Questions…
– Patient perspective and expertise not acknowledged much.
– Conventional loops still can’t do anything for me at this point.
– Time-in-Range was all the rage. I find that goals are too high? Average user A1c is 8.1% of a specific pump…?
– PWD’s can’t even reach those: “TIR 60% is great 3.9-10 mmol/l (70-180 mg/dl)” “Mild hyperglycaemia, between 10-13.9 mmol/l (180-252 mg/dl)” Is it education, not the treatment, that is lacking?
– I’m a BIG believer in healthy, happy, normal blood sugars for all PWD! Where do these oranges come from? If a healthy person had a blood sugar closer to 10/180, they would be diabetic, and not healthy!

Here are my daily take away posts, for more details:

https://www.instagram.com/p/CFaAFH8h89g/?utm_source=ig_web_copy_link
https://www.instagram.com/p/CFces27h9dB/?utm_source=ig_web_copy_link
https://www.instagram.com/p/CFfKAfQhG45/
https://www.instagram.com/p/CFhvDYRh7sT/
https://www.instagram.com/p/CFkgK1oBM99/

👉🏼What do you think? And what are your goal ranges for Time in Range? 👈🏼

Disclaimer
The only purpose of this video and website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video and website is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.

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My Pump Break 2020

Have you ever taken a pump break?

I recently had a six week break from my insulin pump, and I’m not going to lie, going back to MDI (multiple daily injections) wasn’t as easy as I thought!

In this episode of #type1thursday, I share my reasons why, pros and cons of MDI, getting back in the pump, as well as my note-to-self for next time (hint: all of it exciting, none of it smooth…)

My #pumpbreak 2020 – Hanna Boëthius

Share your experiences with me, about pump breaks, MDI vs pump or what you’re most comfortable with?

DISCLAIMER 1: I wasn’t sponsored by any one or any company for this, and paid for all of it myself (with the help of my health insurance, obvi)
DISCLAIMER 2: This is just my own, personal experience. I can’t speak for anyone else, or their experiences.
DISCLAIMER 3: The only purpose of this video and website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video and website are provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.

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Tuna Meatzza

I’m making one of my favorite low carb pizzas – tuna meatzza 🍕 (yes, that means the base is made out of canned tuna!)

Don’t knock it until you’ve tried it! 😋 It’s full of delicious protein, fat and some carbs. And – it’s delicious. It’s also the first time I ever cook in front of the camera. 🐒 This week’s #type1thursday is something else…

Let’s go!

Ps. If you want to watch the whole Cook & Chat (not just the recipe), click here to watch it on my Facebook page!

Tuna Meatzza – Type 1 Thursday – Hanna Boëthius

Tuna Meatzza Recipe

Tuna Meatzza base

2 cans of tuna in brine/natural
1 egg 2 tbsp cream cheese
ca 0.5 dl grana padano cheese

Mix all of it until it becomes a smooth mix. Flatten out between two parchment papers, pre-cook in the oven at 180 Celcius (355 Fahrenheit) for 10-15 minutes.

Meatzza Sauce

1,5 dl Ajvar (turkish vegetable sauce)
1 tbsp tomato puree
1 tsp concentrated bone broth
italian herbs
garlic powder
onion powder
a splash of water

Let simmer until it forms a nice pizza sauce

Tuna Meatzza Toppings

Mozzarella cheese (shredded, without starches!) You can use fresh, too, but it gets waterier.
1 red onion
black olives 😋

After pre-cooking the pizza base, spread on the sauce, followed by the toppings and put it back in the oven for about 10 mins.

Enjoy a low carb, nutritious and delicious meatzza! 🍕 🤤

Disclaimer

The only purpose of this video and website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video and website is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.

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Diabetes & Discrimination?

I’m sure you (too) have a story about discrimination against you because you had diabetes?

On today’s #type1thursday, I want to hear your stories!

What brought this on was a very unfortunate ad by the police in Hamburg, Germany, where they appealed to people to call the police of they saw someone injecting themselves. With the headline “Insulin or Heroin?” Wow. Ouch! (see the image below!)

I share a few instances of my own experience with diabetes & discrimination, perhaps you can relate to some of them, too?

Diabetes & Discrimination? – Type 1 Thursday – Hanna Boëthius

This is the image that my friend Steffi from Pep Me Up Diabetes Blog shared on her Instagram. (Steffi also has some awesome tools to Pep Up your diabetes, check it out here!)

Diabetes & Discrimination by the Hamburg Police
Not-thought-through ad from the Hamburg Police… from @pepmeup.diabetesblog on Instagram

👉🏼 What are your stories about diabetes and discrimination? And how can/should we react to it? Let’s chat! 👈🏼

Disclaimer

The only purpose of this video and website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video and website is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.

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“Why are you so harsh on yourself?” 😳

I got a DM on Instagram recently, where the (probably) well-meaning person asked something along the lines with “why are you so harsh on yourself when it comes to diabetes?” 😳

It was implied that I pay too much attention to things like blood sugars, nutrition and HbA1c, when “all you have to do is count carbs and cover for them with insulin.”

Well. I don’t agree. 🤷🏻‍♀️ To me, that is a way too simplistic way of looking at managing something as individual as diabetes can be. Check out the rest of my answer in this short clip:

https://youtu.be/vMiX2ykf170
Type 1 Thursday – Hanna Boëthius

👉🏼 What tools have you found that work the best for you in your diabetes management? 👈🏼

Disclaimer

The only purpose of this video and website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video and website is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.

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“How Do I Prevent High Blood Sugars Working From Home?”

Today’s question is from Taylor, and she asks: “how to prevent high blood sugars while working from home? And not only by increasing insulin?”

Tricky, tricky indeed! And welcome back to another episode of Type 1 Thursday!

Essentially, what’s at the root of this question is how to improve your insulin sensitivity. And luckily, there are many lifestyle choices you can make to improve exactly that (even without necessarily just upping your insulin). And a lot of it comes down to prioritizing yourself.

As a note insulin requirements, however, is that you need the insulin that you need. Period. Whatever the situation, changes in routine, stress etc that makes your blood sugars run higher than normal, your body needs more insulin. I know way too well how hard this can be to accept, I’ve been there. Many times! But in order for your body to run optimally, it needs varying amounts of insulin at varying times. Try to meet this need with compassion and curiosity (and the necessary insulin, of course)!

Limiting high blood sugars when working form home – Type 1 Thursday – Hanna Boëthius

👉🏼 What are your best tips to increase insulin sensitivity? Let’s chat! 👈🏼

Lifestyle choices that help insulin sensitivity include, but are not limited to, the following:

🌟 Stress management (try meditation, yoga, EFT, essential oils, bath…)
🌟 Movement (focus on body weight moves!)
🌟 Hydration (lots of clean water can help insulin sensitivity)
🌟 Sleep (both quality and quantity!)
🌟 Healthy and blood sugar friendly nutrition (low carb)
🌟 Any supplements? (Magnesium, Omega 3 & Vitamin D is a rule of thumb)
🌟 Find a routine that fits YOU

Disclaimer

The only purpose of this website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This website is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.

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“What do you eat in a day, Hanna?”

On today’s episode of #type1thursday, one of my lovely Instagram followers asked me to make a video about what I eat in a day – so I did!

Find out what my food philosophy is, my insulin philosophy, see all my meals from Monday until Thursday, blood sugar values, and my guilty pleasure/secret food is!

“What do you eat in a day? – Hanna Boëthius – Type 1 Thursday

Now I’d like to hear from you, what’s your food philosophy?

Disclaimer

The only purpose of this video & website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video & website are provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.

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Live Q&A with Hanna

You have been asking me to do a Live Q&A on my Instagram Stories! And now I made it a reality.

Find out my answers to your questions on this weeks #type1thursday !

I’ll happily answer most and any questions about diabetes, lock down, blood sugars, tools, tips & tricks, me – anything you want to know or have my opinion on! 😃

Live Q&A with Hanna Boëthius on Type 1 Thursday

Q&A

You’ll find out my answers to these questions:

🌟 Do you find your diet restrictive?
🌟 What insulins have you had since diagnosis?
🌟 How well do you think you manage your diabetes?
🌟 What is the hardest part of being diabetic? The best part?
🌟 Does your diabetes cause you any other problems?
🌟 What would you like a non-diabetic to know about having diabetes?
🌟 What would you tell someone who has just been diagnosed with diabetes?
🌟 Who do you get support from? Who treats you?
🌟 Have you got any tips for keeping teens interested in their care?
🌟 Were you low carb in your teens?
🌟 When and why did you start coming back to caring better for yourself after dodgy teens?
🌟 How do you bolus for protein/fat?
🌟 Would you recommend low carb to T1D kids?
🌟 Are you using a slower insulin than Novorapid for protein and fat?
🌟 Do you eat a lot of snacks and what would they be?

Do you have any questions for me? Let me know!

Disclaimer

The only purpose of this video and website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video and website is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.

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Double Diabetes, Double The Fun? 😳

What on Earth is Double Diabetes? How does it develop, and who is at risk to get it? Are there ANY solutions to it?

Learn this and so much more from this week’s episode of Type 1 Thursday:

https://youtu.be/HmgNFm34Q44
Double Diabetes – Type 1 Thursday with Hanna Boëthius

What is Double Diabetes?

Double Diabetes is when a person with Type 1 Diabetes develops severe insulin resistance. They may need to use medications that are traditionally used for Type 2 Diabetes, essentially having developed both types of diabetes – hence the term Double Diabetes.

The problem is that T2D can’t really be diagnosed in T1D, no glucose tolerance test or blood insulin measurements will be accurate. Instead, the clinical diagnosis goes a little something like this: do you need a lot of insulin? IS your BMI high (although BMI isn’t even a reliable measurement!), Waist to height ratio high? High blood pressure= Fatty liver? High HbA1c?. If you are T1D and do have these, you could be in the risk zone for Double Diabetes (and no, it isn’t double the fun!). Whether the insulin resistance comes from T1D, lifestyle factors or it’s genetic, the result is the same.

Are there any solutions to Double Diabetes?

We know from the T2D, some cases of it can be reversed with lifestyle changes. But T1D will always persevere. My top tip to cut down the insulin resistance would be to decrease the amount of carbs you eat. It works (and is an acknowledged treatment) for T2D, which is half of the issue!

I actually think I was a Double Diabetic before I changed my lifestyle in 2011. Since the term was coined in 1991, there hasn’t been much activity in this field until very recently, so I was never diagnosed. But I needed an almost obscene amount of insulin, along with the other symptoms mentioned above… 🤷🏻‍♀️

Have you heard of Double Diabetes before? Do you have any experience with it? Let me know in a comment!

Disclaimer

The only purpose of this website and video is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This website and video is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.