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My EASD2020 Summary

Last week, I was fortunate enough to be able participate in EASD2020, through a scholarship from #dedocvoices The point of dedoc and dedocvoices is to give patients the chance to hear the new information and science from the source, as well as ask questions, under the motto of “Nothing about us, without us”, and I couldn’t agree more! What an amazing group to be part of, check them out and apply to join future conferences!

I’ve summarized my main take aways (although you may have seen some on social media throughout the event, too! (see below), trends, and, perhaps most intriguingly, my main questions and/or concerns…

Below is a short summary, in case a 16 minute video is too long! 😉

EASD2020 Summary – Hanna Boëthius

+ Surprisingly much talk about ketones, ketones as fuel & ketosis.
+ Epigenetics role in diabetes complications
+ Genetic subtypes of diabetes becoming more prevalent to be considered in the future.
+ Talk of health literacy, communication, individualised, personalisation, beyond medicine, integrated diabetes care, lifestyle, EDUCATION!
+ Loved getting to know new people, companies, tools, solutions.

Questions…
– Patient perspective and expertise not acknowledged much.
– Conventional loops still can’t do anything for me at this point.
– Time-in-Range was all the rage. I find that goals are too high? Average user A1c is 8.1% of a specific pump…?
– PWD’s can’t even reach those: “TIR 60% is great 3.9-10 mmol/l (70-180 mg/dl)” “Mild hyperglycaemia, between 10-13.9 mmol/l (180-252 mg/dl)” Is it education, not the treatment, that is lacking?
– I’m a BIG believer in healthy, happy, normal blood sugars for all PWD! Where do these oranges come from? If a healthy person had a blood sugar closer to 10/180, they would be diabetic, and not healthy!

Here are my daily take away posts, for more details:

https://www.instagram.com/p/CFaAFH8h89g/?utm_source=ig_web_copy_link
https://www.instagram.com/p/CFces27h9dB/?utm_source=ig_web_copy_link
https://www.instagram.com/p/CFfKAfQhG45/
https://www.instagram.com/p/CFhvDYRh7sT/
https://www.instagram.com/p/CFkgK1oBM99/

👉🏼What do you think? And what are your goal ranges for Time in Range? 👈🏼

Disclaimer
The only purpose of this video and website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video and website is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.

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Brittle Diabetes?

Have you ever heard of brittle diabetes?

What is it? What are the signs? How can you get out iof it?

Brittle Diabetes – Type 1 Thursday – Hanna Boëthius

Although the term “brittle diabetes” is wildly discussed and can come across as very negative and blaming, it’s a concept many people with diabetes (unfortunately) are familiar with. Perhaps you’ve been labeled “brittle” in your medical file, just lika I have in the past?

What can you do about it, then? Is it just to accept it and trry to live as peacefully as possible with it?

Au contraire!

Brittle diabetes can very well be dealt with, and removed from your life, too. It all depends on what the cause if for you. A few common causes of brittle diabetes are medication troubles, stress (blood glucose killer number 1!) , eating disorder, gastrointestinal issues, gastroparesis or insulin sensitivity, to mention a few.

Once you know this, try to look at what lifestyle changes would apply to you – nutrition, medication, movement, mindset, stress management… are a few points to keep in mind.

Share your experiences with me! What’s your number one trick for brittle diabetes?

Disclaimer
The only purpose of this website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This website is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.

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My Pump Break 2020

Have you ever taken a pump break?

I recently had a six week break from my insulin pump, and I’m not going to lie, going back to MDI (multiple daily injections) wasn’t as easy as I thought!

In this episode of #type1thursday, I share my reasons why, pros and cons of MDI, getting back in the pump, as well as my note-to-self for next time (hint: all of it exciting, none of it smooth…)

My #pumpbreak 2020 – Hanna Boëthius

Share your experiences with me, about pump breaks, MDI vs pump or what you’re most comfortable with?

DISCLAIMER 1: I wasn’t sponsored by any one or any company for this, and paid for all of it myself (with the help of my health insurance, obvi)
DISCLAIMER 2: This is just my own, personal experience. I can’t speak for anyone else, or their experiences.
DISCLAIMER 3: The only purpose of this video and website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video and website are provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.

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Tuna Meatzza

I’m making one of my favorite low carb pizzas – tuna meatzza 🍕 (yes, that means the base is made out of canned tuna!)

Don’t knock it until you’ve tried it! 😋 It’s full of delicious protein, fat and some carbs. And – it’s delicious. It’s also the first time I ever cook in front of the camera. 🐒 This week’s #type1thursday is something else…

Let’s go!

Ps. If you want to watch the whole Cook & Chat (not just the recipe), click here to watch it on my Facebook page!

Tuna Meatzza – Type 1 Thursday – Hanna Boëthius

Tuna Meatzza Recipe

Tuna Meatzza base

2 cans of tuna in brine/natural
1 egg 2 tbsp cream cheese
ca 0.5 dl grana padano cheese

Mix all of it until it becomes a smooth mix. Flatten out between two parchment papers, pre-cook in the oven at 180 Celcius (355 Fahrenheit) for 10-15 minutes.

Meatzza Sauce

1,5 dl Ajvar (turkish vegetable sauce)
1 tbsp tomato puree
1 tsp concentrated bone broth
italian herbs
garlic powder
onion powder
a splash of water

Let simmer until it forms a nice pizza sauce

Tuna Meatzza Toppings

Mozzarella cheese (shredded, without starches!) You can use fresh, too, but it gets waterier.
1 red onion
black olives 😋

After pre-cooking the pizza base, spread on the sauce, followed by the toppings and put it back in the oven for about 10 mins.

Enjoy a low carb, nutritious and delicious meatzza! 🍕 🤤

Disclaimer

The only purpose of this video and website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video and website is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.

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Digital Patient Engagement?

I was interviewed by Novo Nordisk regarding how I see the future of patient engagement, as part of their DEEP network.

Check out my views in this short video. What are your views on digital patient engagement – friend or foe? 🤔

https://www.instagram.com/tv/CCWGlNGBTX9/?utm_source=ig_web_copy_link

(This is a sponsored activity by Novo Nordisk. Views are my own)

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#WEGOHealthAwards

Pinch me…!

I’ve been nominated for not one, but THREE #WEGOHealthAwards!🎉 : “Best Kept Secret”, “Patient Leader Hero” and “Best In Show: Instagram” 💖

Aaaand, endorsements are now open for the 9th annual WEGO Health Awards!

I’d be over the moon if you would want to endorse me for either (or both!) of these awards.

You can do so by:

☝️ clicking this link: https://www.wegohealth.com/HannaBoethius

✌🏼 click “Awards” in the upper right hand corner

🤟🏼 Endorse!

Thank you from the bottom of my heart to those who nominated me, as well as to YOU for endorsing. 🙏✨

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Diabetes & Discrimination?

I’m sure you (too) have a story about discrimination against you because you had diabetes?

On today’s #type1thursday, I want to hear your stories!

What brought this on was a very unfortunate ad by the police in Hamburg, Germany, where they appealed to people to call the police of they saw someone injecting themselves. With the headline “Insulin or Heroin?” Wow. Ouch! (see the image below!)

I share a few instances of my own experience with diabetes & discrimination, perhaps you can relate to some of them, too?

Diabetes & Discrimination? – Type 1 Thursday – Hanna Boëthius

This is the image that my friend Steffi from Pep Me Up Diabetes Blog shared on her Instagram. (Steffi also has some awesome tools to Pep Up your diabetes, check it out here!)

Diabetes & Discrimination by the Hamburg Police
Not-thought-through ad from the Hamburg Police… from @pepmeup.diabetesblog on Instagram

👉🏼 What are your stories about diabetes and discrimination? And how can/should we react to it? Let’s chat! 👈🏼

Disclaimer

The only purpose of this video and website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video and website is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.

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“Why are you so harsh on yourself?” 😳

I got a DM on Instagram recently, where the (probably) well-meaning person asked something along the lines with “why are you so harsh on yourself when it comes to diabetes?” 😳

It was implied that I pay too much attention to things like blood sugars, nutrition and HbA1c, when “all you have to do is count carbs and cover for them with insulin.”

Well. I don’t agree. 🤷🏻‍♀️ To me, that is a way too simplistic way of looking at managing something as individual as diabetes can be. Check out the rest of my answer in this short clip:

https://youtu.be/vMiX2ykf170
Type 1 Thursday – Hanna Boëthius

👉🏼 What tools have you found that work the best for you in your diabetes management? 👈🏼

Disclaimer

The only purpose of this video and website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video and website is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.

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“How Do I Prevent High Blood Sugars Working From Home?”

Today’s question is from Taylor, and she asks: “how to prevent high blood sugars while working from home? And not only by increasing insulin?”

Tricky, tricky indeed! And welcome back to another episode of Type 1 Thursday!

Essentially, what’s at the root of this question is how to improve your insulin sensitivity. And luckily, there are many lifestyle choices you can make to improve exactly that (even without necessarily just upping your insulin). And a lot of it comes down to prioritizing yourself.

As a note insulin requirements, however, is that you need the insulin that you need. Period. Whatever the situation, changes in routine, stress etc that makes your blood sugars run higher than normal, your body needs more insulin. I know way too well how hard this can be to accept, I’ve been there. Many times! But in order for your body to run optimally, it needs varying amounts of insulin at varying times. Try to meet this need with compassion and curiosity (and the necessary insulin, of course)!

Limiting high blood sugars when working form home – Type 1 Thursday – Hanna Boëthius

👉🏼 What are your best tips to increase insulin sensitivity? Let’s chat! 👈🏼

Lifestyle choices that help insulin sensitivity include, but are not limited to, the following:

🌟 Stress management (try meditation, yoga, EFT, essential oils, bath…)
🌟 Movement (focus on body weight moves!)
🌟 Hydration (lots of clean water can help insulin sensitivity)
🌟 Sleep (both quality and quantity!)
🌟 Healthy and blood sugar friendly nutrition (low carb)
🌟 Any supplements? (Magnesium, Omega 3 & Vitamin D is a rule of thumb)
🌟 Find a routine that fits YOU

Disclaimer

The only purpose of this website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This website is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.

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“What do you eat in a day, Hanna?”

On today’s episode of #type1thursday, one of my lovely Instagram followers asked me to make a video about what I eat in a day – so I did!

Find out what my food philosophy is, my insulin philosophy, see all my meals from Monday until Thursday, blood sugar values, and my guilty pleasure/secret food is!

“What do you eat in a day? – Hanna Boëthius – Type 1 Thursday

Now I’d like to hear from you, what’s your food philosophy?

Disclaimer

The only purpose of this video & website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video & website are provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.