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Type 1 Thursday – Jet Lag and Blood Sugar Impact?

How does jet lag affect blood sugar? And how can you ease the burden? 

Last week, I attended the most incredible of events, KetoCon 2019, in Austin, TX (awesome city, btw! If you haven’t been yet, you gotta go!). With closer to 3 000 people attending the event, it was amazing to talk to people, connect, share stories and experiences, meet new friends, listen to mind blowing talks with tons of new knowledge. I also had the incredible honor of being a speaker at #ketocon2019, which was an unforgettable experience! (Universe, please send me more speaking gigs! Kthx!) It really is an amazing community, and I’m so proud and honored to be a part of it.

With traveling that far, however, comes a certain amount of jet lag. 7 time zones back and forth within a week is a little…. intense. So I wanted to tell you about how jet lag impacts blood sugar, and share some of my tips on how to make the jet lag easier on you.

What are your best jet lag tips? Let me know in a comment!

Transcription

If you prefer to read, here is the typed up version of the video above:

Today’s topic has been a part of my life for the past week or so. So I thought if it affects me, then it may affect someone else out there.

I recently attended KetoCon 2019, in Austin, Texas, where I was also fortunate enough to be a speaker. I was very, very touched and humbled by that. I had a fantastic time! The amount of people that I met, the awesome storys that I heard, connections, some of the samples I tried… Everything was amazing! So many people were there, it was a huge event this year, closer to 3000 people. I was very, very fortunate to be there! I really hope that I get to go back to KetoCon next year, and I hope that you will join me there as well.

I love travelling! Sometimes with the travel comes changing time zones, perhaps not all the time. But when it does, meaning that your body might be stuck in one time zone, where as you have moved on to the next. That discrepancy between what your body feels like and what it actually what time it actually is, where you are is called a jet lag. This time, we did a very short trip to the States, it was only a week back and forth. It was a little bit intense. Usually, there is a way or direction that it’s easier for us. For me, it’s going to the east, which is apparently uncommon, I have a lot easier to come home from the States to Europe, then going to the States. This will be taken into account for future trips, believe me…

Jet lag can also affect your blood sugar because your body feels like it is in a different time zone than you are and your insulin pump settings are not in tune with your body’s needs. This is despite that you have changed your insulin pump settings by the time you touch down on the new ground. Your body might need a different amount of insulin than what you are giving in at that point in time. This also happens with basal insulin, or long acting insulin, it’s not novelty for insulin pumps.

It is also a huge stress for the body to change time zones. It gets all confused about times and when to sleep and when to stay awake and when you’re hungry and when you need to drink. And when you have insulin, for example. We also know that stress is a blood sugar killer. Because this is such a stress for the body, this can really cause havoc on your blood sugars. (It wasn’t too bad for me personally, this time. I suffered more from a terrible pump site, than the jet lag itself.) And it didn’t help that I was travelling very quickly back and forth, across 7 timezones within a week.

I was going to share a couple of my best jet lag tips. Although they’re not 100%, clearly, but they may alleviate a little bit so that you don’t have to have such a bad time as you may think it might. So first of all, I wanted to clarify that actually a lot of jet lag is a mindset. If you decide that it’s going to be a terrible time being jet lagged. Guess what? It’s going to be a terrible time to be jet lagged for you! That’s not really any magic. If you decide that hey, yes, okay, admit to yourself, yes, it’s not going to be great. But at the same time, it’s going to be worth it for what I’m doing. You’re already halfway there. If you then also add to it that I’m really excited to go and I can’t wait to see what awaits me where I’m going.

Change the timezone already before you leave. That way you are a little bit more acclimatised to the new time zone even before you leave home. That can involve blocking sunlight, when it’s supposed to be night in the new time zone, or it can be being in front of really bright lights when it’s going to be sunshine and it wasn’t at home. Or it can be regulating caffeine intake, all kinds of things. And there’s a lot you can do yourself. But of course, there’s also apps and I just did a quick search on App Store, and there are so many jetlag apps that you can use. Go explore and find what works for you.

Also, hydration is super, super important for trying to prevent as much as possible of jet lag. First and foremost, this is very important while you’re up in the air, because being that high up anyways dehydrates your body. Don’t make it worse for yourself, as dehydration can cause even more problems. A little bit of electrolytes might not be the worst thing to keep your body fully hydrated, healthy and happy throughout your journey.

Make sure that you expose yourself to sunlight when you’re supposed to. When you have arrived go outside, hopefully it is during daylight time, so that you and your brain and your eyes and all this stuff that works together gets used to when it’s supposed to be dark, when it’s supposed to be light. Sunlight is healing, as we all know, lots of vitamin D, that’s great. Also the fresh air helps to maybe keep you awake rather than stuffy indoor air, when you’re not supposed to sleep.

Stay awake until at least 10pm local time, or whatever your bedtime is, so that you are least a little bit more on to the new time zone. There’s also of course includes no napping, do try to stay awake as much as you can until as late as you can or until your bedtime, whatever hits first. And then hope for a really, really good night’s sleep. If you can’t sleep through the night, which may have been my problem going to the US, definitely do a lot of meditation, a lot of snoozing until you feel ready to fall asleep again. You can also add supplements, such as melatonin and that can really help at least to go to sleep. It’s still debated on whether it helps you to stay asleep but it may help to go to sleep. You can also try things like over the counter histamine drops. Check with your doctor first. CBD oil can also help you sleep when you’re supposed to sleep, as does double magnesium.

Being in nature in the time zone that you’re not used to yet and enjoy the walk. That also keeps you from sleeping when you shouldn’t sleep. Do some yoga doors perhaps, there’s also a lot of jet lag yoga on YouTube, for example, that was very helpful for me, as well. But forest bathing definitely does help.

Keep busy. When I got home yesterday morning, I made sure to unpack my whole bag, put on the washing, so that I had something to do the whole time so that I wouldn’t fall asleep. Today, I feel a lot better, probably also thanks to my hydration plan and my forest bathing and meditation and all these things that I do implement for in order to help my jet lag along a little bit quicker and not just suffer from it.

What are your best jetlag tips I can’t wait to talk with you more in the comments below.

And wherever you are exploring next, enjoy and hope the jet lag is not too bad.

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Type 1 Thursday – Unexpected high blood sugars? 🤔

…it could be THIS!

When you’ve done everything you normally do to keep your blood sugar healthy and stable, and your blood sugars all of a sudden rise to the point that you have to drastically increase your basal dose or rate.

You’ve eaten low carb, taken insulin & other meds you may be prescribed, hydrated, moved, supplemented, not stressed too much, changed insulin vials, stuck to your routine – all to no avail. Your blood sugar is stubbornly and unexpectedly high anyway!

In thisType 1 Thursday, I will discuss a possible reason why, based on my own very recent experience.

Watch the video or read the transcription below:

https://youtu.be/qafwdTm4tqQ
Type 1 Thursday – Hanna Boëthius

Have you experienced something like this? Leave a comment and tell us more!

Transcription

If you prefer reading the information, here it is:

Today’s topic is actually a bit of a personal note, because this is something that I’ve recently experienced. If I’ve experienced it, there may be others out there who experienced the same and may need help with similar situations or at least help figuring out what it can be.

If you live with Type 1 Diabetes, you know that some days are just weird, blood sugar-wise. It doesn’t matter what you do, your blood sugar’s either high or it’s low, or it’s whatever where it shouldn’t be. Usually it is a little bit on the higher side, and if you have frequent lows, you just think that you’re cured for a split second!

When you have those stubborn high blood sugars, to the point where you do a basal test to find out how much basal you should be taking. And that actually shows that you’re taking too little basal all of a sudden! It’s not due to hormones, if you’re growing or a woman or anything hormone related. It is not due to the seasons, because whether can involve insulin resistance, too. It’s not because you’ve changed your diet, you’re eating the same thing. Basically, you keep everything the same. Just all of a sudden, your blood sugar’s up, and you need more insulin overall.

“Oh, okay. Have I not exercised enough? Yes, I’ve done that.” Check off the list. “Am I coming down with something? Am I getting a cold or a fever? Is there something like that going on? Nope.” You feel fine as a little baby bird, just maybe apart from the high blood sugar situation? Hmm, what else? “Am I injured somewhere? No, not that I know. And have I been drinking enough water and I’ve been taking my supplements? Have I been eating low carb enough?” It can also of course, be stress, it could have been stress in my case, definitely. And it could have been a bad insulin vial. But as this kept going throughout insulin vials and stressful periods and stuff, I figured out it wasn’t that. All these things that will checklist of lifestyle factors that do influence blood sugar. Everything is in check. What the *bleep* is going on?

Well, this, as I mentioned, did happen to me quite recently. In the past few months, all of a sudden, my basal requirements increased with, I kid you not, 30%! This is, of course, it’s just a number and you have to use the insulin that your body needs. But to me, it felt very weird. Wait, what could this possibly be that is going on? I didn’t think more about it. My blood sugar was then back to their stable, wonderful self, with the 30% extra basal insulin requirement.

But then I started getting a tooth ache. We were traveling at the time, and I was like, “Oh, no, I have to like find a dentist!” I’m not too fond of dentist, as it is. I contemplated finding an emergency dentist where I wasn’t notat home, and didn’t really speak the language. And I don’t know what I’m doing. I don’t know where I am and all the stuff. I’m like, oh, what am I gonna do?

But I made it. I could soothe the symptoms until I got back to my normal dental hygienist, who happily took an X ray of my lower jaw on the left side and noticed, “oh, you have an abscess underneath that tooth that was hurting.” I’m like, “oh, okay, so it was an inflammation. I just couldn’t feel it at the time!” I had walked around with an inflammation, which is known to cause high blood sugars and insulin resistance (or both, which is probably the case here). I was very jolted when she said that it has to be surgically removed.

Now, I’ve had a fair amount of dental work done. Especially when I was still in my high sugar eating days, my teeth started crumbling a little bit. I didn’t know why, because I was eating the way I was supposed to. Since going low carb, I haven’t had any problems at all. So for a long time, I haven’t had to go to the dentist, I’ve only gone to the dental hygienist to get my teeth cleaned and and she checks my teeth. If everything is good, I don’t have to go to dentist. Yay. Happy me. But this time, she’s like, “well, you know, you can’t really remove this on your own, it won’t go away. So we have to actually surgically open up your gums on the lower left side.” This sounded lovely. (If you’re sensitive, please just fast forward!)

“We have to open up your gums on the lower left jaw and we have to dig out the inflammation by hand because it won’t go away.” And I’m like, “No, this is terrible!”, feeling my stress regarding dentists as it is, my blood sugar immediately went up a little bit. I wasn’t very happy about that (but that wasn’t the point of the story.) The point of the story is, that when I finally managed to get the courage to make that appointment, and the dentist was allowed to cut up my gums (and ended up doing a lot of other work that I just don’t even want to remember, because it was terrible.) Then, when the inflammation was out, and I had started healing, look at that, hey, presto – there went my 30% basal rate that I had added on top! My basal rate went back to normal. It was that inflammation.

The moral of my terrible experience and story is that if you do have unexpected highs and your basal rate does go up, it doesn’t have to be anything that you’ve done or that you’re doing wrong, or that you’re not being “compliant”. That’s a terrible word! It can also be something that is going on in your body that you don’t even know about, as in my case, it was a dental inflammation, a dental abscess.

I don’t recommend it to anyone. But if it does happen to you, make sure that you get it taken care of, and go check it out. And this is why it’s actually quite good as a diabetic to get your teeth cleaned quite regularly so that someone can see the differences going on.

Have you ever experienced anything similar to this? Anything that all of a sudden raise your blood glucose values or all of a sudden raise your basal rates?

Let me know and let me know how you sold that in the comments and we’ll be happy. I’ll be happy to do chat with you there.

I hope this story hasn’t put you off! It did me for a good while, but I’m happy that it’s now over and I can look forward again.

Type 1 Thursday – My HbA1c Formula

Lowering your HbA1c as a Type 1 Diabetic is HARD!

How did I turn my double digit HbA1c nightmare into a healthy 5.0% habit? Find out all about my 12 step formula in this week’s Type 1 Thursday!

My HbA1c Formula

What is your goal A1c? Or healthy goal in general? Let me know in a comment below!

Transcription

If you prefer to read about my HbA1c Formula, here you go:

Getting your HbA1c down as a Type 1 Diabetic is hard! It’s really, really hard and requires a lot of work and effort. So how did I turn my HbA1c from a double digit nightmare to a 5.0% healthy habit?

In this week’s Type 1 Thursday, with me Hanna Boëthius, one of the cofounders of The Low Carb Universe, as well as a Type 1 Diabetic since 34 years. I don’t know if you know, but I reached something magnificent. I have had a long, long standing dream of reaching a HbA1c of 5.0% (31 mmol/mol) in the “other scale”. This week, I finally got confirmed that this was the case and I couldn’t be happier! But what you may not know about me, yet, at least is that not that many years ago, I was a total diabetic mess. I failed to take care of myself. I had terrible blood sugars and very little knowledge of how to actually manage diabetes. So my A1c not too long ago was in the double digits, which is not good for anyone who knows anything about blood sugar. At the same time, I was so hopeless because I was clearly not given a the proper tools of taking care of my diabetes.

I actually shared my full story a couple of weeks ago, but so that no one else has to go through all the trials and tribulations that I did, I have formulated my getting a better HbA1c formula!

It’s what I have done to bring my HbA1c from double digits to a healthy, happy 5.0 habit. I’ve actually been under 5.5% for more than three years now, something I’m very happy about! That means that it’s stable, that means that I have found out a few things that work for me. That doesn’t necessarily means that they work for every single Type 1 out there, but they work for me. And maybe just maybe you or someone you know will be able to draw a little bit of inspiration from what I’ve done, so that you can get healthier and to your health or A1c goal as well.

This is a 12 point plan, so buckle up and get ready, we have a lot to go through!

Number one is definitely eat low carb. I know, it’s a very heated topic in all of this. But if you have problems with blood sugar, there is really nothing else that will work as well as to lower your intake of dietary carbohydrates. This also means my favorite topic in the world, which is the law of small numbers. Instead of with a lot of carbs, you add a lot of sugar, and then you have to chase it with a lot of insulin and then the margin of error is just equally as big. Instead, you can eat a little sugar, you add a little insulin and the margin of error is smaller. This is the number one reason why low carb for diabetics is such a great idea, because it leaves out so much of the guessing work. I also incorporated intermittent fasting into my routine a good couple of years ago. This means that I skip breakfast every day, just because I’m just not hungry, and I don’t see the point of stressing my body with trying to, to digest more. Intermittent fasting that has helped me a lot, and maybe it’ll help someone out there too.

You have to find out if you are intolerant towards any sort of foods. A very common intolerance is dairy, for example, which is a big thing within low carb. If you have any issues or allergies, then maybe it’s not going to help you reach those blood sugar goals that you are so dearly after. Make sure that you find out other things, for example eggs, night shades… People have intolerances towards many foods, but you might not find out.

What is your personal carb threshold? I know this is also very widely discussed within the diabetic community. I personally eat maybe 20 grams of carbs a day, most days not even. For example, the great Dr. Richard Bernstein says that you should eat 30 grams a day with six grams of carbs for breakfast, 12 for lunch, and 12 for dinner. It’s all up to you finding out what kind of level that you should be at for the best results. This is definitely not carbs from cookies, and pasta, rice, potatoes, all this stuff. This is green leafy vegetables, vegetables that have grown above ground, as these vegetables don’t impact your blood sugar as much.

Treating the few hypoglycemia as that you still will experience, but not as many, with precision so that you don’t go up and down and down and up and up and down as we were used to on the high carb lifestyle that I was on before, but treat lows with precision. Use the exact number of grams of glucose that you need to get into back into a healthy, safe level of blood sugars. If you overshoot too often, then your average blood glucose is going to go up. If you want to bring your A1c down, then make sure that you stay in range as much as possible.

Second point is medication, whatever kind of medication you’re on. Yes, insulin, but I don’t want to discount any other sort of medications you may be on, they may have an impact on your blood sugar, please check this with your doctor. When it comes to insulin, there are two really important things that you have to do: number one, basal rate or your basal dose of insulin, the long acting insulin that should keep you stable throughout the day and night. Please test that this is correctly dosed. If it’s not, then it’s going to cause you to either slowly but surely go up in blood sugar or go down and blood sugar if you’re take too much basal. You can test this by fasting and checking your blood sugar every hour of that fasting window, you can either divide it up or do 24 hours in one go. The second part is of course, bolus insulin, the mealtime insulin. Make sure you know your ratios, and that they are properly calculated, or found out through trial and error, as they are in my case. The common ratio calculations that exists with high carb eating, don’t quite apply to all diabetics eating low carbs. So for very many of us it has to become a trial and error. With a law of small numbers, the error margin is not that big. So you’re not going to be in for a wild ride. It takes some time to figure it out.

Also pre bolus for your meals, even if they don’t contain that many carbs, just so that the insulin has a bit of time to start working before the food comes and does the same. What really helps when you’re trying to find out your medication and ratios and pre bolusing for meals, and everything else, is of course to have a continuous glucose monitor. This is either Dexcom, for example, or Freestyle Libre, or any of the other ones that are out there, whatever one fits you the best. I know they’re very expensive, and they’re very hotly debated as well. But they are a huge, huge help when it comes to really lowering your A1c, because when you see a trend you can start acting before the catastrophe is a fact, hyper or hypo.

The next point, is blood sugar levels. As a perfect diabetic, or whatever that means, you should try to aim for an average of 4.6 mmol/l or 83 mg/dl. This is what people who are healthy and have a functioning pancreas’ are on average. If you are at a much higher average right now, don’t try to get down to 4.6 or 83 in one go, do it step by step. All of the modern blood sugar meters have an average measurement of blood sugar. Depending on how often you prick your finger, it might may be representative of what it actually looks like. As soon as you see where that average is, just try to aim for values slightly below that. You will slowly but surely take it down to normal healthy levels and therefore achieve a normal healthy A1c. You HbA1c, in short, it’s the average blood sugar for the past sort of six to eight to 12 weeks.

How you correct blood sugar also matters! Don’t be aggressive about it, whether you have to correct a hypo or a hyper. That causes the large margin of error. Be careful about it, and have a little bit of patience. I’m the worst person to talk about this, as I have zero patience! Be sure that you have a little bit of patience when you do treat, as things can turn quite suddenly. Find out if you are affected by the dawn phenomenon, for example, which is when the liver kicks in and starts shooting out sugar so that you wake up in the morning. Or if you have something that is called boots on the ground syndrome, which is when you are have woken up and you put your feet on the ground and the stress of your day gets your liver going and your blood sugar consequently goes up. Those can also be fine tuned with basal insulin, which needs to be handled by a doctor.

Then number next is stress. Stress is a really a blood sugar killer! It really aggravates your whole system, and it causes your blood sugars to go up. Make sure that you can prevent and avoid as much stress as you can in your every day life. How can you reduce it? Well, you have to find what works for you. Could it be yoga? Could it be meditation? Could it be a long walk in the nature? Could it be a hobby, could it be having a pet? Stress is really something that we have to work all of us, but especially people with glucose problems need to work hard at trying to eliminate it.

Next point, movement. I don’t like the word exercise, so I’m going to use movement. Our bodies are made to be moving and our bodies feel good if they get to move often and in different ways. Find out what makes you happy. What is fun for you, what way of moving is so fantastic that you just forget about time? It could be dancing, it could be the ones that I mentioned before, yoga, walking. It could be weight training, it could be dancing on the beach (which we do happen to do in Mallorca! If for nothing else, join us to find out how much fun that is in November.)

Movement has a very individual reaction on blood sugar. In the long run it definitely smooths things out. But when you’re doing exercise, or you’re moving vigorously, chances are that your blood sugar is going to go up. You need to find out what strategy works best for you. There is a rule of thumb – strength training makes your blood sugar up and cardio makes your blood sugar go down. But that’s not true for everyone, that’s just a rule of thumb! You have to find out what works for you and what happens to your body in different movement situations.

Next point is planning. Make sure that you are prepared for basically anything when it comes to diabetes. If you’re traveling, carry a glucagon kit, always have glucose tabs with you, no matter where you go. And even if you’re only doing a quick run, make sure that you are prepared for anything that can happen.

No matter how great of control you have of diabetes, things still do happen. Please be prepared for all eventualities at all times. For example, also bring enough test strips for your blood sugar meter, make sure that your insulin pump or your vials have enough insulin in them for the day or the time you’re going to be away. It is all about planning. It really is about treating and treating blood sugar – if you fail to plan, you really plan to fail. Don’t get caught in that trap. That can save you a lot of “interesting” moments with diabetes.

Next point is mindset. What is your goal? Set a clear, actionable, timely goal. Also make a plan of how you’re going to get there. Without motivation and a proper mindset, you aren’t going to reach your goals.

Next one, acceptance. Accept that diabetes is what it is, life still happens with it. And you can only do the best you can, and you can only do the best that works for you. You can’t do much more than that. And please don’t hate diabetes! The more you make it your enemy, the more it’s going to lash right back at you and you’re not going to be able to work with it, which is what you have to do. You have to be kind to yourself, you have to show yourself some love, even when things go wrong. That way you’re going to get to a better relationship with your diabetes, which is also a huge point.

Find your support network, whether that is that our coaches, CDE’s and nurses, doctors, spouses, personal trainers, and other happy people around you, like your friends, family, pets – all of these people that that create the network around you. Make sure they are supportive. This is who you turn to when you have a bad day, or when you want to celebrate a fantastic achievement. You don’t have to sit there by yourself, you can turn to other people and let them help you both in good times and in bad. When it comes to the medical side of your support network, please make sure that you have a Medical Dream Team. This is a key to getting the care that you know that you need, and to try to find out what works best for you. This is where you can really get support for your lifestyle choices, and also help you with your diabetes management.

Hydration, you have to hydrate! Make sure that you hydrate properly, because this helps the body to keep all that, perhaps, unnecessary sugar at bay. The body really does well when it is well hydrated. I personally try to aim for about two liters of clean water a day. It doesn’t have to be that for you.

Finding a routine that works for you . A daily routine, as in you get up sort of the same time in the morning, you go to bed sort of the same time at night, and everything in between. Of course you should be spontaneous and have fun, too! But the main parts that could have a little bit of a structure will help you manage your blood sugars better. Perhaps this could include when you take your basal injection, if you’re on pens or syringes, or when you change your pump site. Also work into your routine when you take your supplements, when and how much you hydrate, when you eat, what you eat, when you move… Building it into a routine is great, because blood sugars, as far as I’m concerned, aren’t too happy about uneven routines, they tend to do better when there is a routine, so that you know what you’re doing.

My final point are supplements. Some potentially blood sugar lowering supplements may be of use. The ones that I take, for example, are omega 3, vitamin D (helps autoimmunity) magnesium (high blood sugars do require a lot of magnesium), also zinc for the immune system. Chromium also can help keeping your blood sugar levels a little bit more stable, as it helps with insulin sensitivity way down in the cells. Also, I’ve heard a lot of good things, but I haven’t tried it myself yet, about alpha linoic acid, ALA.

These are my 12 steps of what I did, and my HbA1c formula to lower mine from a double digit nightmare to a healthy and happy 5.0% (which actually in fact, if I get to brag for a second, is better than even some healthy people have!). I’m very very proud of myself, especially after 34 years of living with this disease and it not having been very easy at for very long periods of time.

What is your A1c goal (or if you are not focusing on A1c – what is your health goal)?

Let me know in a comment and I’ll be happy to chat with you there.

Type 1 Thursday – Why the Dietary Wars?

In today’s Type 1 Thursday, it’s time for a more personal comment… 

Why do people disagree so strongly about what people with diabetes should eat, when we all should have a common goal (notmal, healthy blood sugars)? 

Type 1 Thursday with Hanna Boëthius – Why the Dietary Wars?

What’s your opinion about this? What tools and tricks have you tried to try to manage your diabetes and what worked for you? I would love to hear in a comment somewhere and I will be happy to chat with you there. Comments and questions are welcome!

Transcription

If you prefer to read, here’s the transcription of the episode above:

Hello, and welcome to another episode of Type 1 Thursday with me Hanna, one of the cofounders of The Low Carb Universe. Also, as I’m sure you’ve heard me say many, many times now, I’ve had Type 1 Diabetes since I was two years old. So for 34 years, I’ve been juggling this wonderful roller coaster that is Type 1 diabetes. And I am happy to share some of my knowledge with you that I figured out and some of the aces up my sleeve that I have gathered in these 34 years! I wasn’t always in control, as I am today. I was very uneven moment, even majority of my diabetes career…

But today, I want to talk about a topic on more of a personal comment. And this is actually something that I’ve gotten comments about before and also during this series, namely the nutrition debate for people with diabetes.

Why is it so inflamed regarding what you should eat as a person with diabetes? How can there be such divided opinions? Everyone who has an opinion seems to be going head to head with each other about this?

I’m actually sad about this, because we all should have that one common goal, which is that all people with diabetes are worthy of normal, healthy, happy healing blood sugars. How the person in question, who is living with diabetes, gets there should be less of a question – as long as they do. If someone comes to me and says, “Hey Hanna, I went vegan and since then my blood sugars are really great!” I’m like, “amazing, great! I’m so happy you found what works for you!” Or if someone says, “you know what, I’m following the Western diet to a tee, and I have amazing blood sugar’s” My response? “Great, fantastic!!

No one could be happier for you than I am in that moment, when you tell me that you have fantastic blood sugars regardless of how or what you’re eating, I, and I know very many people with me, who do advocate for a lower carb, real food, sugar free way of eating don’t want to be militant about it. It’s not that I want to convert every single person with diabetes, that’s not my point. It will never be my point.

But the point is to educate, to inform, and to make people with diabetes aware that they do have a choice.

There is a choice when you’ve tried everything else. When you’ve tried every single diet, every single insulin, every single supplement, way of eating, timing of insulin, there are still options. There’s always, always, always something that you can do in order to improve your health.

It’s not about being militant, it’s not about standing my ground and holding it tight. No,. My goal is for every person with diabetes, to know that there are different ways of managing blood sugar and diabetes, and it but it doesn’t have to be according to the standard Western diet, it doesn’t have to be a vegan approach. It doesn’t have to be low carb, it can be something completely different, as long as it works for YOU. The main point to find what works for you, you can’t look at anyone else. You can draw inspiration from other people who are doing something that is working for them, and then take the good parts. And leave what doesn’t work for you, it’s all about information.

I have had a struggling past with diabetes, it’s been very, very difficult for me to control my diabetes with the standard Western diet that I was told to eat for 26 years. Which, requires, well, recommends, 35 to 60 grams of carbs per meal, five times a day. For me that became unreasonable. It didn’t work. I couldn’t maintain good, healthy, normal blood sugars, without mountain tops and valley bottoms, in terms of blood sugars, which of course doesn’t make you feel great at all. It makes you feel terrible.

My whole point about advocating for low carb for diabetes, and I know very many with me, it is that as long as you get stable, healthy, happy blood sugars, we are all game for it. It wasn’t until I actually did start cutting down my carbs, coincidentally, perhaps, that I started to get better control of my diabetes. So I went from a double digit HbA1c, to a level of 5.1% last time. This is well within the healthy range!

I swear that I could not have done that without the help of dietary change, a change in my lifestyle, and a change in the way that I was eating. For me, I know that it’s not sustainable to do that on a standard Western diet with up to 240 grams of carbohydrate a day, I can’t chase that with insulin. We come back to the law, small numbers, this works a lot better for many, many diabetics.

I really wish I would have had the choice myself earlier to know about that there is a low carb way of eating so that I could have made the decision and try it out earlier, seeing the benefits. I would have saved myself a lot of pain, a lot of suffering a lot of worry, a lot of anxiety because that always comes hand in hand with wobbly blood sugars

This is this is why it’s become such a passion for me, and for the rest of us talking about low carb for diabetes, that every single person with diabetes knows that there is that option to try out as well. When every other option has been explored and transpired, that’s run out of time. It is so important to me that you know that there is another option. And that there are very many options beyond this, too. The main point is that this isn’t disregarded as an option.

So it’s so sad to me that the nutrition debate, especially within diabetes, but also generally, for the general population, has become so inflamed. And I really wish that we could see that we all have a common goal, all of us trying to educate people with diabetes, whether it is with different ways of eating, with exercise, with all of these lifestyle measures… I just would be so happy if we could just realize that we have a common goal, and that is that people with diabetes have normal, healthy, happy blood sugars.

If you have any questions or comments, or what’s your opinion about this? What tools and tricks have you tried to try to manage your diabetes and what worked for you? I would love to hear in a comment somewhere and I will be happy to chat with you there.

Type 1 Thursday – Blood Sugar Ranges

Welcome to this week’s Type 1 Thursday with me! I’m doing this series ahead of the world’s first event solely focusing on diabetes from a low carb perspective, diabetes. by The Low Carb Universe!

We’re talking blood sugar ranges today, what is normal, what can be expected on low carb and how to get there. 

Did you learn something new in this episode? Let me know in a comment below!

Diabetes Lies

How do you feel when you find out that someone has been lying to you?

You feel cheated, stupid and end up having trust issues.

It doesn’t even have to be full-on lying, it can also be a few mis-truths, or not telling you the whole story so that you can’t put things into context.

For 26 years I believed a lot of things about diabetes that I now know are untrue. For 26 out of 30 years I believed that I knew less than my doctors, that I couldn’t trust my instincts and that I was just doing it all wrong.

And all along my mother has said that “you’re always your own best doctor”. Boy, oh boy is she right! But when you’re told, repeatedly by people who “know better” that this isn’t the case and that you should really be doing it their way, which is usually straight out of a medical textbook, you start losing faith in your own thinking, reasoning and ways. What about what works for YOU as an individual? We both know that diabetes is a very individual disease and there are as many options to manage it well as there are people who have it.

It wasn’t until I was finally brave enough to look my own health in the eye and decide to take it into my own hands that I noticed that I truly had the power to change my own health destiny. This was an incredibly difficult step to take, not to mention scary.

I had been told for far too long, and far too many times, that what I was about to do I would probably die from. Straight away. This was clearly a blatant lie, I’m still here and I’m doing better health-wise than ever.

But what I’m really here to do now is to stop the lies. Stop the untruths that are clearly ruining more people’s lives than they have to. They’ve had their time on stage, it’s time for the truth.

Do you ever feel like there has to be more to it than just “eat like everyone else and take more insulin”?

Have you lost a little hope to ever get diabetes more controlled?

Diabetes can often put you in a life or death situation. Sometimes more often than you’re willing to give it credit for. This is why it’s so important to stop being lied to, to trust your gut feeling and to realize that more insulin isn’t automatically the only answer there is for you to control diabetes better.

I know what it’s like to being close to giving up completely, just do what the doctors tell you (because-they-know-best) and deep down wonder “why me?”. To play a game of Russian roulette with your life at stake – every day. It sucks. It feels so hopeless and there’s no end in sight. At the same time, you don’t have the energy to do anything about it, either. Mainly due to your fluctuating blood sugars, where curves closely resemble something like a roller coaster. You’re stuck in a well, looking for the rope you need to get out.

In order for you to actually get out, and here comes the major suckage, you have to take responsibility for your situation AND your own health. You need to look your own health in the eye and show it who is boss. Plainly put, it’s about going from not giving a shit to giving tons of shits.

But you can only get there if and when you know the true facts. The real things that will help you feel better, be healthier, happier and more blood sugar stable. The information that takes you off the roller coaster and puts you in the spinning tea cups, if you will.

Diabetes will never be completely at bay, especially not if you have Type 1. But with a few changes of food, simple tricks and lifehacks it can get so much better.

You just have to realize how to make the shift of going from doing-it-by-the-book-but-it-doesn’t-work to ah-this-is-awesome. With this shift, you choose to be healthy and happy.

A great first step could be to join the webinar I’m hosting on Monday, 13th July 2015, where I’ll be talking about 5 major lies your doctor tells you about diabetes. This is your chance to learn how to help yourself to a better life with diabetes. It’s not hopeless, if I can do it, so can you.

Sign up for the webinar here.

The Low Blood Sugar Make up

Diabetes gets in the way of life sometimes.

And the other way around, too. But that’s the topic of another story.

Being such a big part of our lives, it would be weird if it didn’t mix in and mash up your plans sometimes.

Sometimes we’re talking about interrupted sleep, another time it’s an unplanned meal on the menu. And sometimes it’s about being so tired, simple chores can be compared to climbing Mount Everest. At least. Not to mention the guesstimation game we play with the pancreas on our hip, in a pen or syringe. Up? Down? A little up and then down? The other way around? Or even *gasp* stable and level? (Watching your blood sugar do a salsa dance on a cgm is sometimes entertaining, as long as you don’t put too much personal attachment to the numbers)

You can almost never tell with 100% accuracy where your blood sugar will end up after a meal, some insulin or just by plain old living.

And sometimes you can’t let the stubbornness of diabetes get in the way, either.

Like the other morning, when I had to get to an appointment I had.

I woke up at 4.4 mmol/l (79 mg/dl), which I was happy about. My cgm curve looked smooth from the night and I was even more happy about that.

I jumped in the shower, washed my hair, moisturized and brushed my teeth. I was feeling a little sleep-groggy, but nothing else.

I went to put on my clothes, got dressed and noticed an odd, fuzzy thought popping up in my head that usually stems from the low-blood-sugar-drawer in my brain.

Nevermind that right now, I had other things to do, like taking my morning medicine (thankfully not insulin) and supplements.

When I got back downstairs from the kitchen, my next task was to do my make up. But I decided to check my cgm first, which showed 4.1 mmol/l (73 mg/dl).

Ok, I thought, that’s not bad, although I’m dropping. More of the odd, fuzzy thoughts popped up, and I decided to check my blood sugar on my blood sugar meter, if only to ensure myself that I wasn’t low.

3.4 mmol/l (60 mg/dl) “treat your low BG!”, my d-companion Doris (OmniPod) was telling me.

“Ahh, eff-word”, I said out loud. “I don’t have time for this!”

I usually don’t treat lows until below 3.5 mmol/l, as I find they usually recover fine from there with just the help of lowering the basal on my pump. But as I was leaving, and it was 0.1 mmol/l lower than my usual threshold, I decided to pop a glucose tablet and shut of the basal on my pump for 30 mins.

Knowing I’d be completely OK within 15 minutes, but had to leave the house in 20, I had little choice but to continue with my morning routine and my make up, which is a fairly effortless task.

If you’ve never experienced a low blood sugar before, let me tell you that it can be quite “interesting”. It feels a bit like being tipsy, without having had anything fun to drink. Or like being in a very fast, accelerating car while standing on the ground. It can be dizzy, vertigo, confused and temporary vision problems all in a big merry go round that doesn’t want to stop right now. (It can also feel a gazillion times worse than that, but thankfully that wasn’t the case this time.)

Having to think twice if you’re *actually* using foundation and not the bright pink blusher heavily all over your face is a challenge I’m usually blessed from. I usually know where things go in terms of make up…

Or double-checking that the eyebrow pencil is still brown and you didn’t accidentally reach for the turquoise eyeliner to fill in your eyebrows instead. Or concentrating so hard on getting mascara ON my eyelashes and not only underneath my eye. Not to mention actually getting that blusher semi-equally distributed. Or checking that the foundation isn’t blotchy anywhere.

This can, but probably shouldn’t, be compared to doing your makeup after a good after work drinking session with your colleagues. In short, no bueno.

Throughout this particular mornings routine work, I kept thinking if I actually managed that well with everything, or if, once I was back on track again, would find myself looking like some Cubist rendition of myself. Or like a clown. Or like Gene Simmons from Kiss.

All I could imagine seeing once the low blood sugar fog had lifted was some weird version of myself, as it would have been painted by Pablo Picasso himself. Or something equally scary.

This time I was lucky, though.

When my blood sugar was back in normal range again, I saw that I looked more or less like myself, if only ever so slightly more tired.

What do you do when your blood sugar drops low, do you keep going or stop and wait? What does your decision depend on?

HbA1c, just a number?

Do you ever find yourself paying a little too much attention to a specific number?

Your weight? Your distance covered? Milestones reached? Friends on Facebook?

Or, perhaps, your HbA1c, the “lighthouse” of how you’re doing as a diabetic?

It’s easy to put a lot of weight on a number (pun intended!), because it’s something measurable, something you can follow and have a direct understanding of whether it improves or gets worse.

What’s difficult to understand is that these numbers, none of the ones I mentioned above, matter much.

Your weight technically doesn’t matter much, as long as you feel fit and healthy with it. Neither does the amount of kilometers you ran last week, unless you were in a race… Counting milestones only creates an inner stress and pressure to reach your goals faster, harder, more productively. And, friends on Facebook – are they r e a l l y friends…?

I know. This is crazy cakes.

We’ve been told, time and time again, to set measurable goals, and it’s really hard to find ways to measure improvement without those numbers.

So also when it comes to diabetes care and the HbA1c value.

I’ve been conditioned for 30 years to regard my HbA1c as the shining light of how well I’m doing, so the habit isn’t easy to break. Even when I know I’ve done pretty darn well lately.

I had my a-few-times-a-year appointment with my endocrinologist earlier this week.

Driving there (only takes about 7 minutes, but still), I was super-nervous and kept sending little wishes out for a lower-than-last-time HbA1c reading (which was 6,4%).

I got there, peed in a cup, had some blood taken, weighed in and measured my blood pressure. For someone who has a severe case of “White Coat Syndrome”, which is when you get nervous just seeing, being near or even thinking of a doctors office, the last part always seems a little stupid. And it was this time too, because it was through the roof.

I got into my endo’s office and we chatted a bit about life in general, before we got into the whole diabetes thing.

Once again, I was complimented by her on how well I’m doing. This is still a weird feeling to me, after having basically been a disappointment and being scolded for the other 28 years I’ve met with endocrinologists.

She told me that there probably isn’t much more I can optimize about my care without having a lot more hypos. “Watch me” I thought to myself, as I still think I can, and I will keep trying to optimize and improve until the day I die.

Anyway, to the value that every diabetic has been conditioned to regard as a sign of life or death: my HbA1c was 6,2% this time, or 44 mmol/mol.

This is the lowest I can ever remember having during my 30-year career in and with diabetes. I asked my parents, too, and they can’t remember anything lower either.

The fact that I’ve put so much emphasis on it and then receiving exactly the result I was hoping for made me ecstatic. Happy, euphoric and close to tears of pride. In my opinion, with all right. (And I have yet to celebrate this properly!)

After we had discussed some other topics, and I had received all the supplies I needed from their office (making it feel like Christmas every time I go there!), I got into my car and drove off, full of joy!

I got home, told my husband about the result, he gave ma a huge congratulatory hug, and I was so darn pleased with myself. I posted a rarely-seen-selfie  and got on with my day.

Later in the evening it hit me though. I was sad. Despite my excellent HbA1c result. Despite the praise and the congratulations. I felt saddened.

It took me a good few minutes to figure it out, a little EFT tapping and some meditation came in very handy at that point.

I was sad, because that result didn’t mean anything, really.

Fine, it means that I’m reasonably well controlled in my diabetes. It means that I’ve come a long way from where I started a few years ago after a long diabetes burn out, giving me double figure HbA1c’s. And it gives me a little hope for the future.

But it also means that I’m not really awarded in anyway for it (unless I buy myself something pretty, or have a glass of champagne to celebrate). It doesn’t give me a break from diabetes, not even for a minute. It doesn’t stop the poking, prodding and always having to be on alert. It doesn’t mean I can live carefree and forget about everything.

It just means that I’m alright and that my doctor is proud of me. And that I’m technically “pre-diabetic” according to my HbA1c. 

Don’t get me wrong.

I love the fact hat I’ve found my own way and am finally in the position where I feel like I have even the faintest of clues about this whole diabetes thing.

I love the feeling of not being scolded by my dream health care team. And I love that I can say that I’ve reached a new record in my life.

But I don’t think it’s the best idea to put as much of a value as I do on this one value. Especially as there are so many other factors that determine how well I’m doing and/or how healthy I am.

 

What about you – do you also put too much emphasis on one single number? Perhaps it’s your weight? How far you’ve run this week? Or maybe you’re like me and put (too) much focus on your HbA1c?

Diabetes Sweet Spot

When you start on a new journey, you ideally want to know what the eff you’ve gotten yourself into.

Not least when it’s about your health, well-being and future life.

I get that. I totally do.

And I’ve got something really special up my sleeve for you today!

This is one of my biggest secrets in doing what I do. You could see it as a 4-year short cut, as that’s how long it took me (well, plus 26 years…) to get to where I am today.

 

Diabetes Sweet Spot

Diabetes Sweet Spot

 

Let me explain this diagram a little (?) more in detail…

First up we have

  1. Sexy Food and Water

What I mean by this is real food that makes you feel your absolute best, fuels your body, your mind and your soul whilst not jerking your blood sugars around.

In my experience, and many others that I’ve helped and talked to, the mentality of “eating and covering for it” simply doesn’t work.

Eating a lower amount of carbs than we generally do today is very beneficial to most people. Even more so if you’ve got diabetes as a constant companion.

Picture this, a doctor tells their patient, who is lactose intolerant, to drink 1 liter of milk a day, “because it’s good for them”… Do you see the flaw in logic here?

If that patient does drink that milk, “like the doctor said”, they will be in a world of pain, discomfort and also spend too much time on the porcelain throne. Because their body is unable to process lactose properly.

All clear?

Now, picture this; a doctor/CDE/nutritionist tells a person with diabetes to eat 60% grains and carbohydrates with every meal, “because they need it”… (Wait, where have I heard this before…?!)

Carbohydrates, no matter in which form (pasta, rice, bread, cereals, pastries, cookies, ice cream….) turn into pure sugar (glucose) as soon as it hits your mouth and the enzymes in your saliva.

And what do people with diabetes not produce (enough of)?! The hormone that lets energy, in the form of sugar, into the cells, namely insulin. And if we can’t produce it ourselves, we have to add it in a much less precise and guesstimating way in comparison to our well-oiled-running-like-machines-bodies.

Ergo, removing some (or even all) of those sugar-shape shifter-carbs from what you eat is a great idea.

That would be the same logic as for our lactose intolerant friend I mentioned before – to take away what your body can’t process properly to reduce pain, discomfort and make life easier.

(I’ll happily talk more about this, if you don’t agree, let me know in the comments below!)

And water. Tons of clean, clear water infused with alpine air (in a best case scenario).

You need water not only for hydration, but also for moving energy/sugar around, to keep the insulin you take active and to flush your system of toxins and other stuff slugging around.

  1. Medications & Supplements

Even if you do everything else right, it doesn’t disguise the fact that you’ll still need insulin. Just a lot less of it, which in my books is a definite winner! Today, I’m taking 1/3 of the amount of insulin that I used to a couple of years ago.

When you start taking better care of the other areas in your life, you’ll usually get the privilege to cut down on, or even completely stop taking, other medications you might be on.

For me it was the case with my blood pressure medicine. I could cut my dosage with 75% after I started eating better, relaxing and taking better care of myself. But just because I was able to cut down, it doesn’t mean I don’t have to take them at all, I still do. Just a much smaller dosage.

And I still haven’t needed medication for my Hashimoto’s Thyroiditis, which is usually treated with hormones.

I generally recommend a series of supplements, which I’m currently taking myself as well. Yep, all of them:

Vitamin D3, Omega 3, Antioxidants (in the form of green powders), Probiotics, Vitamin B Complex, Magnesium and Zinc. Sometimes I add Chromium to the mix as well.

But these aren’t set in stone; it really depends on you and your own journey.

  1. Self-love & Attitude

Oh, how I can go on about the importance of self-love!

The fact is though, that when you start seeing yourself, your body, mind, soul and brain (and every little cell in between) as one Team, shit starts to shift.

This means that you don’t think of your pancreas (for example) as the bad guy for having applied for (way too) early retirement. Or hate your immune system for attacking your pancreas, thyroid, skin (or whatever else it’s decided you could do without).

And how do you get to your Team Me status?

A lot of it comes from self-love, making sure you feel good and love yourself.

What is self-love then? Here are some ideas:

  • Eating well. Healthy, healing real food full of happiness and love.
  • Water! It purifies you, makes sure you get energy to your cells and hydrates every part of you.
  • Meditation
  • Exercise
  • Breathe deeply, truly and all the way into your toes.
  • Stretching or going to that yoga class you know you love.
  • Rocking it out to your favorite tune is the pure definition of self-love!
  • Make Gratitude your Attitude! Tell yourself what you’re grateful for every day, either just mentally, or write it down in a journal, or make a gratitude jar.
  • “Do nothing” days
  • Essential Oils
  • Reading your favorite magazine with a cup of tea/coffee/or hey, even bubbly.
  • Treat yourself to a massage or a mani/pedi.
  • Treating yourself to that one thing you’ve been eyeing up lately. It’s ok to be materialistic, too!
  • Putting up boundaries. What’s ok for you and what isn’t? Break up with those things that aren’t.
  • Prioritizing good sleep is good self-care. (Danielle LaPorte said that, and I know she’s right!)
  • Put. Away. Your. Phone. I promise you, you don’t need to know what is happening on Facebook every second of the day.

But how can you make sure you don’t forget about loving yourself?

Here are my Top 3 Tips:

  • Schedule it. Otherwise it’s the easiest part to neglect for me (even though I really know I can’t afford to).
  • Make it a daily practice. Can you feel the benefits of it when you meditate? Make sure you practice it regularly. Does a long walk in the sunshine do you worlds of good? Get hooked on them!
  • Make yourself your first priority. It sounds really selfish, but it’s not. Think about it, how can you be there for others if you’re not feeling well yourself? Make a team out of your body and yourself, call it “Team Me”. This team always has priority over everything and everyone else. Fact.
  1. De-stress & Movement

This point goes much hand-in-hand with the previous one.

If you’ve changed your attitude about yourself and diabetes, you will have a lot less stress in your life. That’s a promise.

Meditation, eating well, and all of the others I mentioned above help de-stress you and your life.

As does exercise, for example.

I’m not saying you have to turn into an instant iron man competitor, ultra marathon runner or Olympic-grade swimmer right now. (Although if that’s what you want, then by all means go ahead! You have all of my awe and respect)

Start s l o w l y, gently and build on your exercise and fitness level every day. It’s not more difficult than starting with a short, brisk walk outside.

After a while, the walk will automatically become longer or more intensive, as your body feels it can perform better. Before you know it, you might even want to try jogging or hiking in the mountains.

And all of this while not even thinking about your daily walks as exercise! How flipping great is that?!

It doesn’t have to be a walk though, anything exercise-y that floats your boat is awesome, be it yoga, zumba, dancing on your own to your favorite tunes, body exercises, stretches, skiing, swimming, or a royal mix of them all.

The most important point is that it shouldn’t feel like exercise – you should do it by yourself, without thinking “this is hard”.

  1. Daily Rituals

The rituals you set up for yourself is what you can lean back on when times get a little less rosy and sunny, for example.

If you feel a little lost, you know that your ritual (or routine, but that’s a boring word) can be a saving grace.

Also, if your body knows approximately when or in what order something will be given to it, it knows to prepare for it.

My daily ritual looks a little something like this…

I wake up at 7:30am, find myself a centering thought for the day, after which I check my blood sugar (both on my cgm and manually). Then I check the main notifications on my phone (I want to change this)… Then I get up, take my supplements and proceed to my morning meditation. After a shower and putting some clothes on, I open my laptop and work until lunch, before which I check my blood sugar manually again. It’s a healthy, happy meal. After checking the notifications again…. I go back to my computer and work for another 2 or so hours. Then I go out for a walk (my daily walks are holy) as an afternoon break, after checking my blood sugar. Back to work (client/computer/meeting) until it’s time to make dinner and check my blood sugar. After dinner, my husband and I talk, go out for a date or do something productive. Before bed time there’s the last batch of supplements, taking my make up off with coconut oil, checking my blood sugar and showing gratitude for the day I’ve just experienced. Lights out, sleep.

Of course this differs when I have something special to do, but this is my ground framework.

But this way things like checking my blood sugar becomes part of my routine and it doesn’t feel as difficult or even impossible to do it. I even miss doing it if I somehow skip it in my routine, or have ran out of test strips… (I know, I’m a little weird. But I’m happy that I am, life is that much easier when you’re a little weird.)

 

 

Et viola, if you get these areas right for YOU, you’ve entered into what I love to call the Diabetes Sweet Spot.
This diagram is essentially a summary of the last 30 years of my own research and experience, and if you do need some help on the way here, I’m all ears and would love to help you.

 

Have you found your Diabetes Sweet Spot? How did you get there? And how long did it take you?

When Diabetes is bigger than it needs to be

Diabetes is undoubtedly a very big part of your life. Just as it is of mine.

And you can blame a lot of stuff on it. Sometimes you have to blame more on it than you’re willing to admit.

If you’re anything like me, people have asked you why you don’t blame MORE stuff on it to get out of sticky situations etc… I have to admit sometimes it’s tempting, but I have enough things I have to blame on diabetes, and I don’t really feel the need to make it any worse.

But there are certain moments when diabetes is pointed out as the bad guy, even if it (for once) has nothing, or very little, to do with what’s going on.

When diabetes becomes bigger than it has to be, I sometimes find it difficult to cope. It feels a little like just because I have diabetes, I’m not allowed to have “real people feelings”, but instead everything has to be related to that my pancreas doesn’t work like it should. I’ll show you some examples in a second.

These are all examples that has happened to me, or that I’ve noticed recently.

Doctors blaming everything on diabetes. Yes, they’re doctors, yes, they know all of your health history, and yes, they (sometimes) see the bigger picture.

And whilst things like infections, colds, poor healing time and your thyroid doing a funky dance can very well be diabetes related, it doesn’t mean everything is.

Like an injury you’ve gotten while being (or trying to be) sporty. Unless you had a mega hypo or hyper blood sugar when it happened, it quite probably has nothing to do with diabetes.

Or an allergic reaction. Again, unless it’s gluten (which can be diabetes related), my seafood allergy probably isn’t connected to my diabetes.

Yet, in both of these instances I’ve gotten the answer that it’s “because of your diabetes”. Newsflash!

Being thirsty. While excessive thirst is a good indicator of your blood sugar being high, again, it doesn’t have to be the case. At all.

A “normal” person needs anything from about 1,5 liters of water and upwards per day. And this can vary greatly if you’ve done more exercise than regular, if you’re on certain medications, if you’re stressed, if you’re pregnant or breastfeeding, your altitude, if it’s hot outside, if you’ve had alcohol, if you’re sick with fever or diahorrea… The list goes on! And that’s ignoring any kind of diabetes, high blood sugars, and other fun stuff.

And yet, especially as a child, I was always asked if my blood sugar was high when I was thirsty. (Sorry, mom! I know you were only worried about me.)

There could have been a gazillion other reasons for my thirst. But then it was always had to be due to my blood sugar and that I had somehow misbehaved and eaten something I shouldn’t have.

This lives on in me, and every time I’m super thirsty, I automatically check my blood sugar. Even if it’s first thing in the morning when your body is automatically de-hydrated and needs to fill up on the water reserves.

Being tired. Yup, it’s exhausting to live with diabetes 24 hours of every day, of every year. It is.

But it’s also exhausting to be a human being, with everything that one needs to do, should do, and does anyway.

Every yawn, every early night and not being the last man standing at a fantastic party isn’t automatically connected to me having diabetes.

Maybe I have something to do early tomorrow and need my sleep? Maybe I just love sleep? Maybe I can feel so much better if I only get a proper nights sleep on it? And maybe you do, too?

We all need, under optimal circumstances, about 7-9 hours of sleep per night. To let your body rest, to let it regenerate those broken cells, to think clearly the next morning. And for things like weight loss and hormone regulation, proper sleep is crucial.

Having a bad day. As soon as you’re having a bad day, those loving people next to you automatically assume it’s because something’s up with your diabetes. I know, every single one of you only wants the best for me, and you’re worried about my well-being. And I am grateful for that.

But “normal people” aren’t Mary-Poppins-ray-of-sunshine all the time either.

It may very well be that people with diabetes have these days slightly more often than people who don’t have to worry about things like asking a little computer how you’re doing in that minute, and worry (more or less) about what that number means.

Everyone has days when they just want to give up, when they feel hopeless and feel like they can’t take it anymore. Everyone, including those with diabetes, have those days.

And they are allowed. Those days are needed, too. If only to remind you how well you’re doing on other days.

Manicurist… This is a fantastic story. And it happened to me quite recently.

One day, not too long ago, I decided to treat myself to a manicure.

For once, said manicure wouldn’t be done by myself (gasp!), but by a professional. And I was really looking forward to some me-time, some pampering and switching off my head and just relax.

The manicure itself was lovely, I felt amazing after it and having chosen to do gel lack, I expected it to last at least a week.

When I woke up the following morning, I saw one of the nails had already chipped! Off of my expensive manicure (not even that is cheap in Switzerland).

I was upset and frankly a little shocked. I didn’t think it would start chipping off that soon. I called the nail lady to let her know, and she told me to come back later the same day to fix it.

When I got there, we got to talking. I told her that I have diabetes, and of course her grandmas cousins friend had it too, but died. Great.

Suddenly she says “I know why it chipped off so soon on you!” Being all ears, I asked her to explain.

“It’s because of your diabetes!”

I couldn’t believe my ears.

I asked her if she was serious, and she told me that was definitely the reason.

Almost speechlessly I thanked her for her help and that she was so nice as to fix my problem so quickly.

This might even have been a believable reason, if it wasn’t for that other times I’ve treated myself to gel lack manicures, they’ve held just fine. No chips, no complaints until about a week after. Which is normal. To me, she was just blaming her crappy job on my very-handy-for-excuses illness…

 

Diabetes is always a double-edged sword; on one side you have the negative stuff that is really painful, sore and keeps you in bed some days. On the other, you have things you can, should and need to do. Like having “real people feelings”.

 

When have you experienced people blaming your diabetes for something it wasn’t really part of? Tell me in the comments below!