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My EASD2020 Summary
Last week, I was fortunate enough to be able participate in EASD2020, through a scholarship from #dedocvoices The point of dedoc and dedocvoices is to give patients the chance to hear the new information and science from the source, as well as ask questions, under the motto of “Nothing about us, without us”, and I couldn’t agree more! What an amazing group to be part of, check them out and apply to join future conferences!
I’ve summarized my main take aways (although you may have seen some on social media throughout the event, too! (see below), trends, and, perhaps most intriguingly, my main questions and/or concerns…
Below is a short summary, in case a 16 minute video is too long! 😉
+ Surprisingly much talk about ketones, ketones as fuel & ketosis.
+ Epigenetics role in diabetes complications
+ Genetic subtypes of diabetes becoming more prevalent to be considered in the future.
+ Talk of health literacy, communication, individualised, personalisation, beyond medicine, integrated diabetes care, lifestyle, EDUCATION!
+ Loved getting to know new people, companies, tools, solutions.
Questions…
– Patient perspective and expertise not acknowledged much.
– Conventional loops still can’t do anything for me at this point.
– Time-in-Range was all the rage. I find that goals are too high? Average user A1c is 8.1% of a specific pump…?
– PWD’s can’t even reach those: “TIR 60% is great 3.9-10 mmol/l (70-180 mg/dl)” “Mild hyperglycaemia, between 10-13.9 mmol/l (180-252 mg/dl)” Is it education, not the treatment, that is lacking?
– I’m a BIG believer in healthy, happy, normal blood sugars for all PWD! Where do these oranges come from? If a healthy person had a blood sugar closer to 10/180, they would be diabetic, and not healthy!
Here are my daily take away posts, for more details:
👉🏼What do you think? And what are your goal ranges for Time in Range? 👈🏼
Disclaimer
The only purpose of this video and website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video and website is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.
Brittle Diabetes?
Have you ever heard of brittle diabetes?
What is it? What are the signs? How can you get out iof it?
Although the term “brittle diabetes” is wildly discussed and can come across as very negative and blaming, it’s a concept many people with diabetes (unfortunately) are familiar with. Perhaps you’ve been labeled “brittle” in your medical file, just lika I have in the past?
What can you do about it, then? Is it just to accept it and trry to live as peacefully as possible with it?
Au contraire!
Brittle diabetes can very well be dealt with, and removed from your life, too. It all depends on what the cause if for you. A few common causes of brittle diabetes are medication troubles, stress (blood glucose killer number 1!) , eating disorder, gastrointestinal issues, gastroparesis or insulin sensitivity, to mention a few.
Once you know this, try to look at what lifestyle changes would apply to you – nutrition, medication, movement, mindset, stress management… are a few points to keep in mind.
Share your experiences with me! What’s your number one trick for brittle diabetes?
Disclaimer
The only purpose of this website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This website is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.
My Pump Break 2020
Have you ever taken a pump break?
I recently had a six week break from my insulin pump, and I’m not going to lie, going back to MDI (multiple daily injections) wasn’t as easy as I thought!
In this episode of #type1thursday, I share my reasons why, pros and cons of MDI, getting back in the pump, as well as my note-to-self for next time (hint: all of it exciting, none of it smooth…)
Share your experiences with me, about pump breaks, MDI vs pump or what you’re most comfortable with?
DISCLAIMER 1: I wasn’t sponsored by any one or any company for this, and paid for all of it myself (with the help of my health insurance, obvi)
DISCLAIMER 2: This is just my own, personal experience. I can’t speak for anyone else, or their experiences.
DISCLAIMER 3: The only purpose of this video and website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video and website are provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.
Tuna Meatzza
I’m making one of my favorite low carb pizzas – tuna meatzza 🍕 (yes, that means the base is made out of canned tuna!)
Don’t knock it until you’ve tried it! 😋 It’s full of delicious protein, fat and some carbs. And – it’s delicious. It’s also the first time I ever cook in front of the camera. 🐒 This week’s #type1thursday is something else…
Let’s go!
Ps. If you want to watch the whole Cook & Chat (not just the recipe), click here to watch it on my Facebook page!
Tuna Meatzza Recipe
Tuna Meatzza base
2 cans of tuna in brine/natural
1 egg 2 tbsp cream cheese
ca 0.5 dl grana padano cheese
Mix all of it until it becomes a smooth mix. Flatten out between two parchment papers, pre-cook in the oven at 180 Celcius (355 Fahrenheit) for 10-15 minutes.
Meatzza Sauce
1,5 dl Ajvar (turkish vegetable sauce)
1 tbsp tomato puree
1 tsp concentrated bone broth
italian herbs
garlic powder
onion powder
a splash of water
Let simmer until it forms a nice pizza sauce
Tuna Meatzza Toppings
Mozzarella cheese (shredded, without starches!) You can use fresh, too, but it gets waterier.
1 red onion
black olives 😋
After pre-cooking the pizza base, spread on the sauce, followed by the toppings and put it back in the oven for about 10 mins.
Enjoy a low carb, nutritious and delicious meatzza! 🍕 🤤
Disclaimer
The only purpose of this video and website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video and website is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.
Digital Patient Engagement?
I was interviewed by Novo Nordisk regarding how I see the future of patient engagement, as part of their DEEP network.
Check out my views in this short video. What are your views on digital patient engagement – friend or foe? 🤔
(This is a sponsored activity by Novo Nordisk. Views are my own)