Blog
#ATTD2023 – Berlin, Germany
Advanced Treatments and Technologies for Diabetes (ATTD) is one of the world’s biggest diabetes conferences. It takes place yearly in a European city, and ATTD2023 this year it was held in Berlin, Germany (where I used to live, so I was very happy to go back!). In short, it is a fantastic roller coaster circus of people, brands, impressions, science, symposia, presentations, sessions – everything. It’s it’s a diabetes nerds little dream to go to there! Which is why I was very happy to be awarded a dedoc voices scholarship (THANK YOU very much to the dedoc team!), enabling me to join the conference. Dedoc covered my travel costs and accommodation, as well as my entry ticket to the event (so that is all clear, out in the open!). However, all the views and opinions that I’ve shared so far and about share with you now are my own, and are in no way influenced by dedoc – just to be super honest with you!
For this post, I have actually finally gathered my top five, no, actually six, takeaways from this year’s #attd2023, which took place at the end of February. I clearly needed some time to digest it all before I could put this together for you. Better late than never, right?!
1. Personalization of care 🤩
There was a huge focus on how to individualize care for the person, it was recognized both in terms of technology (considering it’s mainly a diabetes tech conference). The focus was on tech; automated insulin delivery systems, loops, CGMs, insulin pumps of different sizes, colors and shapes, kind of thing. And – the individualization of it came up in a lot of the sessions, talks, even on the on the industry floor, it was a lot of focus on how to individualize care, because we are not the same. It is so important! We are not an one-size-fits-all, whether it’s about nutrition or diabetes technology, or care in general – we’re not the same. It’s fantastic to see that the individualization part is finally being recognized after so many years of trying to get that on to the agenda.
The recognition of differences between us is great, and it goes hand in hand with the second top takeaway;
2. Interoperability of tech 🥳
The interoperability of technology! Starting the week with the OPEN Closing conference (if you haven’t checked out the OPEN Project, do it because they are doing some fantastic work on especially DIY looping systems and how they affect people and their care!), marking the end of the four year long project and all the studies that have come out of it. Inspiring, touching and hopeful for the future!
Another aspect was shown by a company called Diabeter from the Netherlands, which I predict holds the key to the future of diabetes care. They have a fantastic concept, where the daily data from every person with diabetes within a clinic is collected and analyzed by an algorithm. Your healthcare provider can then easily contact you when YOU need it, rather than when “it’s time”. I’m interested to hear if you feel the same – let me know in a comment below.
Continuous ketone monitoring was another topic. Just like we continuously measure glucose right now, we can also measure ketones and other multibiomarkers. It basically means that the same sensor would measure several points. So it’ll be glucose, ketones and lactate in this one example presented, giving you a bigger insight into your own health and your own care. So hey, it might actually be helpful! Abbott issued a press release for their planned ketone and glucose sensor last year, although they can’t say when it will be on the market yet.
Connected pens for those who don’t want, or can’t have, an insulin pump, was also heavily discussed. Connected pens would essentially do a similar job to an automated insulin delivery thing, but of course, there you actually have to take the insulin yourself. Still, the connection to the continuous glucose monitoring system/sensor could be immensely helpful for very many!
Sort-of in the same area, there was talk about glucose targets (and how technology can improve them, hence under point 2). Current blood sugar targets were questioned; should targets remain between 3.9 and 10 mmol/l (70-180 mg/dl) or if this should actually be tightened to further optimize health.Time in tight range, meaning up to 7.8 mmol/l (140 mg/dl), was suggested in one of my favorite sessions, because it was so thought provoking! With the help CGM, there are further metrics to check in on in on your care. On the one side, there is HbA1c, which we all measure every one once in a while, at least we should! The new-kid-on-the-bloc at ATTD was really time in range – LOTS of talk about it (I think close to every session I attended) I also did hear mentioned standard deviation of blood sugar as an aspect to review as well, which is fantastic considering if you look back on my blog, there is a lengthy video about this from several years ago, so I’m happy to see this. I almost cried a little in my chair saying that.
The summary of this point is really that diabetes tech is taking over care, and there’s nothing we can do about it, whether we want to or not! I’m all for tech, I am a bionic woman with all the tech.
3. Nutrition wasn’t really a topic 🤷🏻♀️
Nutrition, a topic that steadily gains traction in many other areas of health, health care and medicine, wasn’t really a topic at all at this year’s four day conference. In other areas, we see a lot of talk about nutrient density, and how important it is to make sure that you get as many nutrients as possible. There was basically the one session that I found on nutrition, which I, of course, attended, bearing in mind my nutritional background.
The session spent all of it’s allotted 90 minutes on talking about how to,in the future, change the automated insulin delivery algorithms so that they can handle things like pizza, or sushi. Soon, you don’t even have to let the system know that you are eating – it will recognize it itself. The full focus was on this aspect. The only comment I heard about actual nutrition was when a dietitian from the Sheba Medical Centre in Israel said: “yes, of course, you can eat pizza as a type one diabetic, but I would prefer you to eat broccoli.” And that was basically it when it came to nutrition!
This was something that definitely caught my eye and my brain. And yet, the consensus from another session was that “elevated glucose is harmful”. The discrepancy was big here – okay, we’re leaving the blood sugars solely in the hands of technology, whereas you can do so much with lifestyle choices when it comes to improving diabetes care.
4. Increased focus on sex-specific diabetes issues 🙌🏼
With International Women’s Day having been just around the corner, point number 4 is very interesting and well timed!
There was a clearly increased focus on sex specific diabetes issues. Let’s just cut to the chase – diabetes is different for women. Our hormone profile is one of the key operators in making this the case. Every stage of the time of the month is different, and that can impact blood sugar’s a lot, meaning changes are required in diabetes care, too. Further, different times in our lives, such as puberty, menstruation, pregnancy and menopause, have different outcomes and impacts on diabetes care, as well.
Two fellow dedoc voices presented on this during ATTD – Laura presented her masters thesis, a systematic review and meta analysis on T1D and menstruation, and Dawn presented her research into looping during menopause. So interesting, and so proud to see it coming from the community!
It was good to see this particular topic highlighted, as there has been very little focus on it before. Yes, we ABSOLUTELY need more research, we need more holistic research into women and diabetes. But this is a great start.
5. The patient voice is getting louder 📣
I’m happy to say that the patient voice is getting louder!
While I had a lot of mixed interactions during ATTD 2023, with some being clear that the patient presence and voice wasn’t that appreciated (🥴), I did notice that there were a lot of more focus on the patient voice in the scientific sessions and the symposia. For example, one of the chairs of ATTD, Professor Battelino, said during the dedoc symposium “we are listening”. This was a huge testament to that we are being heard more than we have before. Also, Professor Garg, the 2023 recipient of the ATTD-Lilly Insulin Centennial Award, actually thanked his patients for teaching him about diabetes. I thought that was really beautiful. And I can’t wait to see more healthcare professionals adopt a similar point of view when it comes to their patients. Because we do have a lot of expertise! We live with this 24/7 365 every second of every day, and why not listen to us and hear what we’re going through and maybe learn from it too?
6. Innovation is found within the community (rather than the big players)🚨
Innovation within the diabetes space really lies within the community rather than the big players.
The big diabetes companies were magnificent to see on the exhibition floor; bright (blinding?) displays, fantastic coffee, presentations and select influencers. And also their technology and solutions on offer. All good! But there wasn’t much innovation there – they seemed to live on the same technology and offering the same, or very similar things as they have done the past five years. All of them are focusing on loops, and different automated insulin delivery systems. Even the newest sensors weren’t out to test, just view through a glass box.
Actually, the innovation lies within the diabetes community. There were a whole startup/tech corner on the exhibition floor, with several smaller players, yet much more impressive and agile in what they are offering. Everything from little syringes for either children or when you pump fails, cheaper insulin pumps, thermometer solutions to ensure that your insulin is being stored correctly. Several app solutions for carb counting, gamifications, exercise, diabetic foot, and help to analyse all this diabetes related data we have. There are so many great ideas!
Many of these are working on the interoperability of technology, which wasn\t a topic at all for the big companies. They want to keep theirs, well, theirs. So fingers crossed that more and more people can can take part of their of what these innovators have to offer.
Dedoc & the #dedocvoices
For a long time, people with diabetes were not really welcome at these big diabetes conferences, they were not really encouraged to join (heck, we’re probably still aren’t really encouraged to join, yet there we are 😇). The conferences are still mainly focused at health care professionals of different kinds.
HOWEVER, through the dedoc voices program, you can apply for scholarships to go to these big diabetes events. This is amazing because this is where the patient voice and our voices are so sorely needed. While in some sessions and interactions they’re perhaps not as appreciated as in others, it is still very worth it to be there and hear the new stuff from the horse’s mouth, so to speak. Truly, dedocs hashtag #nothingaboutuswithoutus is so SPOT ON!
Next time they have a call for applications for the dedoc voices program you’ll find it by following @dedoc_org. They are a fantastic team behind it! Apply for the next one because you are going to leave being so inspired, so happy, feeling amazing having rejoinined the community after these few hard years that we’ve had. So I highly recommend!
What is covered in the scholarship:
– travel costs/flights
– hotel accommodation
– entrance to the conference
What’s the catch? None, beyond that you have to promise to #payitforward with the things you learn, see and experience at the conference to your community, whether online or in real life. The ultimate bonus is that you get to network with all these big companies, big names within diabetes, tell them how it is living with diabetes, and you get to enjoy the fantastic community that we are all part of.
Question – would you want to join such a big diabetes conference? What is your favorite takeaway? Leave me a comment below!
Ps. I know. It’s been A WHILE. The last few years have been heavy, both collectively and personally. In the interest of preserving my mental health, I had to reprioritize. But now I feel like it’s time to get back. And I’m very happy that it now is the time.
Disclaimer
The only purpose of this video and website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video and website is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.
My EASD2020 Summary
Last week, I was fortunate enough to be able participate in EASD2020, through a scholarship from #dedocvoices The point of dedoc and dedocvoices is to give patients the chance to hear the new information and science from the source, as well as ask questions, under the motto of “Nothing about us, without us”, and I couldn’t agree more! What an amazing group to be part of, check them out and apply to join future conferences!
I’ve summarized my main take aways (although you may have seen some on social media throughout the event, too! (see below), trends, and, perhaps most intriguingly, my main questions and/or concerns…
Below is a short summary, in case a 16 minute video is too long! 😉
+ Surprisingly much talk about ketones, ketones as fuel & ketosis.
+ Epigenetics role in diabetes complications
+ Genetic subtypes of diabetes becoming more prevalent to be considered in the future.
+ Talk of health literacy, communication, individualised, personalisation, beyond medicine, integrated diabetes care, lifestyle, EDUCATION!
+ Loved getting to know new people, companies, tools, solutions.
Questions…
– Patient perspective and expertise not acknowledged much.
– Conventional loops still can’t do anything for me at this point.
– Time-in-Range was all the rage. I find that goals are too high? Average user A1c is 8.1% of a specific pump…?
– PWD’s can’t even reach those: “TIR 60% is great 3.9-10 mmol/l (70-180 mg/dl)” “Mild hyperglycaemia, between 10-13.9 mmol/l (180-252 mg/dl)” Is it education, not the treatment, that is lacking?
– I’m a BIG believer in healthy, happy, normal blood sugars for all PWD! Where do these oranges come from? If a healthy person had a blood sugar closer to 10/180, they would be diabetic, and not healthy!
Here are my daily take away posts, for more details:
👉🏼What do you think? And what are your goal ranges for Time in Range? 👈🏼
Disclaimer
The only purpose of this video and website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video and website is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.
Brittle Diabetes?
Have you ever heard of brittle diabetes?
What is it? What are the signs? How can you get out iof it?
Although the term “brittle diabetes” is wildly discussed and can come across as very negative and blaming, it’s a concept many people with diabetes (unfortunately) are familiar with. Perhaps you’ve been labeled “brittle” in your medical file, just lika I have in the past?
What can you do about it, then? Is it just to accept it and trry to live as peacefully as possible with it?
Au contraire!
Brittle diabetes can very well be dealt with, and removed from your life, too. It all depends on what the cause if for you. A few common causes of brittle diabetes are medication troubles, stress (blood glucose killer number 1!) , eating disorder, gastrointestinal issues, gastroparesis or insulin sensitivity, to mention a few.
Once you know this, try to look at what lifestyle changes would apply to you – nutrition, medication, movement, mindset, stress management… are a few points to keep in mind.
Share your experiences with me! What’s your number one trick for brittle diabetes?
Disclaimer
The only purpose of this website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This website is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.
My Pump Break 2020
Have you ever taken a pump break?
I recently had a six week break from my insulin pump, and I’m not going to lie, going back to MDI (multiple daily injections) wasn’t as easy as I thought!
In this episode of #type1thursday, I share my reasons why, pros and cons of MDI, getting back in the pump, as well as my note-to-self for next time (hint: all of it exciting, none of it smooth…)
Share your experiences with me, about pump breaks, MDI vs pump or what you’re most comfortable with?
DISCLAIMER 1: I wasn’t sponsored by any one or any company for this, and paid for all of it myself (with the help of my health insurance, obvi)
DISCLAIMER 2: This is just my own, personal experience. I can’t speak for anyone else, or their experiences.
DISCLAIMER 3: The only purpose of this video and website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video and website are provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.
Tuna Meatzza
I’m making one of my favorite low carb pizzas – tuna meatzza 🍕 (yes, that means the base is made out of canned tuna!)
Don’t knock it until you’ve tried it! 😋 It’s full of delicious protein, fat and some carbs. And – it’s delicious. It’s also the first time I ever cook in front of the camera. 🐒 This week’s #type1thursday is something else…
Let’s go!
Ps. If you want to watch the whole Cook & Chat (not just the recipe), click here to watch it on my Facebook page!
Tuna Meatzza Recipe
Tuna Meatzza base
2 cans of tuna in brine/natural
1 egg 2 tbsp cream cheese
ca 0.5 dl grana padano cheese
Mix all of it until it becomes a smooth mix. Flatten out between two parchment papers, pre-cook in the oven at 180 Celcius (355 Fahrenheit) for 10-15 minutes.
Meatzza Sauce
1,5 dl Ajvar (turkish vegetable sauce)
1 tbsp tomato puree
1 tsp concentrated bone broth
italian herbs
garlic powder
onion powder
a splash of water
Let simmer until it forms a nice pizza sauce
Tuna Meatzza Toppings
Mozzarella cheese (shredded, without starches!) You can use fresh, too, but it gets waterier.
1 red onion
black olives 😋
After pre-cooking the pizza base, spread on the sauce, followed by the toppings and put it back in the oven for about 10 mins.
Enjoy a low carb, nutritious and delicious meatzza! 🍕 🤤
Disclaimer
The only purpose of this video and website is to educate and to inform. It is no substitute for professional care by a doctor or other qualified medical professional. This video and website is provided on the understanding that it does not constitute medical or other professional advice or services. Instead, we encourage you to discuss your options with a health care provider who specializes in treating Type 1 Diabetes.