If I (& my parents) had a penny for every time we’ve heard that “promise” during the past 34 years, we’d be laughing all the way to the bank.
Let’s talk about the prospect of curing T1D. Do you think we’re getting close to one? 🤔
After a weekend of particularly shitty blood sugars, this is more relevant than usual. A weekend where I had to, yet again, come to terms with my own mortality. And insulin acting like saline.
With diabetes awareness month coming up in November, there is somehow a communal hope brewing. A hope of more awareness, because awareness should lead research teams everywhere to be motivated to finally find a cure. Right?! Don’t get me wrong, awareness is GREAT! It’s necessary, it’s inspiring and needed in the world. All T1Ds should speak up, and not only during the month of November. But – diabetes awareness alone won’t cure us.
And frankly, not to be too pessimistic, but rather I choose to see it as a realistic mindset, I’m not sure there will be a cure in my lifetime. 🤷🏻♀️ Have we gotten any closer on this in the past 34 years since my diagnosis? Since the diagnosis of those who have lived with this a lot longer than I have? I don’t know.
Just because ones diabetes is (mostly) “well controlled” doesn’t mean the fears aren’t there. The fears about the future. What the future may, or may not, bring. Will diabetes cause any limitations to my life? And it certainly doesn’t mean I wouldn’t be first in line when they start curing it. Even though diabetes tools and tech has evolved at an astonishing speed in recent years – we still need a cure. Even if it is very possible to have happy, healthy blood sugars with T1D – we need a cure. And we would have needed that cure yesterday.
Until then, we’re not waiting. Do whatever it takes for you to be healthier, to live your best life and thrive with T1D. ✨
“WHO THE FUCK ARE YOU TO CALL YOURSELF A DIABETES EXPERT?!”
I could sense the frustration behind his words, the anger in his question. (IG DMs are almost always a joy. 🙃)
“Oh, honey”, I thought, “it’s not the first (and presumably not the last) time someone gets triggered by my username & brand.”🤷🏻♀️
The thing is, I’m not THE expert on diabetes, by any means! 🛑 I am, however, the expert on MY diabetes, just like you are the expert on your diabetes (or at least should aim to be). 🌟 Figuring out the individual aspects of diabetes management is what makes you better at it, get more knowledge, know where to find resources for issues you can’t solve yourself – an expert! And it also makes you more able to help others figure out theirs. 💪🏼
I’m not a medical professional and I’ve never claimed to be one. What I am is a Type 1 Diabetic, who’s had 34 years of experience with this, and have made every mistake, every pitfall, every terrible decision a diabetic can make. I’m also a nutrition coach, specializing in T1D and lifestyle. 💉
What I’ve also done is to drag myself up after each and every single one of those downfalls. That’s the thing, right? Fall down 100 times, but what really matters is that you get up 101 times. 🔝
So, who the fuck am I to call myself a diabetes expert? I’ve figured out a formula of lifestyle measures that you can us to help your diabetes management. Things that your healthcare team haven’t even thought of yet, but can have an incredible impact! Because diabetes management is SO much more than just “eat whatever you want and cover it with insulin – oh, and do some exercise”. And I have tons of resources to turn to when I find something I don’t know.📚
All I want to do is to inspire you to take your health into your own hands, because I know you can. You can become the expert on your diabetes and your health, because it’s important, if not life dependent in some cases. If I could do it, so can you. 🙌🏼😃✨
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